Epilepsy Foundation of Minnesota

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Comment by TravisEd on October 9, 2012 at 5:16pm

Don't know WHAT I was thinking when I posted that.  Sorry Stephanie.

Comment by Stephanie Kolari on October 9, 2012 at 3:50pm

Hi All and Travis! Thank you for leaving a comment.

I want to make sure everyone has the right information about the Conference. Here are the details:
MIDWEST SEIZURE SMART FALL CONFERENCE
Saturday, November 10 from 9:00 AM - 4:00 PM
Embassy Suites Minneapolis Airport

Please go to the EFMN website to register:

http://www.epilepsyfoundationmn.org/workshops_conferences.aspx

Thank you for stopping in to the EFMN group on ECOMMUNITIES!

Please let me know if there is anything we can do to get you further connected with EFMN Programs and Services!

Stephanie

Comment by Stephanie Kolari on April 22, 2011 at 2:48pm

Greetings Minnesota folks-Hi Travis!  Thank you for dropping by to say hi! Yes, we will be hosting 2 conferences this year!  The first conference will be held on July 21 in Duluth, MN.  The fall conference will be on October 15 in the Twin Cities Metro!  Please see our website, www.efmn.org,  for more details on the Summer Conference and have a great weekend and happy holiday!

 

Stephanie

Comment by TravisEd on April 21, 2011 at 4:50pm

Just dropping in to say high.  Hope to catch some of you this fall at the conference.

Comment by Melissa on December 14, 2010 at 10:30pm

Does anyone have experience with Lennox Gastaut or know anything about it?

Comment by Tom on May 15, 2010 at 3:56pm

Just dropping by to say "hello" to all my Minnesota friends. :) I enjoyed going to the Epilepsy Conference in 2009. I reside in the Northern part of Iowa, but stay in tune with some of Mn's happenings. For everyone participating in Camjp Oz this Summer...have a wonderful time :)

If any of you are familiar with the Sanford Health network, just wanted to share that I work in one of their Iowa hospitals. It's good to stay in tune with healthcare "happenings" and up-coming continued changes.

Feel free to drop me a line on my page.

Tom

Comment by cheryl on February 9, 2010 at 11:58pm

It was May 2009 and I was at the doctors with my daughter , I do not remember the seizure I had , My Daughter said I was not myself and she was worried so when we got home she told her Dad and he said he had seen me do the same behavior the night before..They brought me to the hospital and I was Diagnosed with Epilepsy..Wow did that Scare me …I didn’t even understand that anything was wrong..It felt so strange. My memory was terrible everything felt foreign to me, I wanted to scream and did ..Why am I not like everyone else, what did I do to myself that this is happening… I was given My meds and sent out the Door I did not receive seizure awareness and what kinds of seizures there was until I studied it and read books I was put on Topamax in the beginning and I could not sleep…The Doctors weaned me off of Topamax and I am taking Keppra now . I wanted to talk with someone who had Epilepsy, but I was Homebound and cannot get to groups..So I searched Epilepsy on Facebook and have meet the most Amazing people that understand my struggle.. Well guess what ..I did not do this to myself ..and know that having Epilepsy has made me a Stronger person..I reached out to others and in talking with them we found common ground and a support system that has helped me understand I am not Alone in this


.. I have Complex Partial Temporal lobe seizures and Myclonic..had a hysterectomy in August for endometrioses and since that have been not well , Mayo clinic is going to help. They are going to put me through a exstanceive Pain rehabilitation program .. Taken it a Day at a Time ...there are so many things I can’t remember ,, have lost some of memory due to seizures .. At age 20 I was diagnosed with Fibromyalgia and I was doing good with my pain and have had lots of surgeries for endometrioses .So in August of 2009 I had a Hysterectomy ..One of My neurologist stated to me that my Brain has stopped protecting itself and my instance body pain brings on my seizures..But with time and patience and a positive attitude I will understand how to help myself and how to help others who are struggling with this Unknown Disease..Epilepsy is just as hard for our families , Doctors , Communities , because it is so unknown…We need to Help One Another to find the answers. This Journey I am on is a hard one ,but at the same time it is an Amazing one.. Let Go let God Guide US on this Journey
Thank you
God Bless Everyone
Cheryl Lynn Becklin

Comment by Christine Harling on September 3, 2009 at 2:06pm

Hi, my 17 month old was just diagnosed with E. I'm wondering if anyone is in the Fargo area...I'm looking for some support. :)

Comment by Stephanie Kolari on August 31, 2009 at 3:35pm

Hey Everyone,

Please put this event on your calendar:
INNER VOICE, INNER STRENGTH
An event to showcase Brainstorms Art and Epilogues Writings on:
Saturday, October 10, 2009 from 6:30 to 8:30 PM at
OPEN BOOK
1011 Washington Avenue South
Minneapolis, Minnesota
This event is made possible, in part, by funds provided by the Metropolitan Regional Arts Council through an appropriation by the Minnesota Legislature.
Join us for a FREE event (ALL ARE WELCOME) to raise awareness about epilepsy through art, poetry and prose! We are excited to welcome Vineeta Sawkar, News Anchor as our MC for the night. A short program, beginning at 7 PM, will feature readings by three Epilogues Writers and will accompany gallery viewing, hors d'oeuvres and beverages. We hope to see you there!

If you need more information about this event, please feel free to contact me at 1-800-779-0777 ext. 2312! Thank you, Stephanie

Comment by Vicki Kopplin on July 15, 2009 at 6:08pm

This form of communication is new to us at the Epielpsy Foundation of Minnesota - please let us know what you think! You can always find more info at www.efmn.org