Epilepsy Foundation

Information

Epilepsy Foundation of Florida

The group for Floridians suffering from epilepsy and those who support them.

Website: http://www.epilepsyfla.org
Location: Florida
Members: 78
Latest Activity: Jun 23


Epilepsy Foundation of Florida wins award for excellence in service.
Video about epilepsy and the work of the Epilepsy Foundation of Florida.

Epilepsy Still Not Completely Understood
Pat Dean, President of the Florida Foundation's Board, discusses the need for more governmental epilepsy research support with a S. Florida television station. The report also highlights the case of Madison Deriveaux, 7, who has suffered from epilepsy from infancy.

AED medication switching - the Today Show (NBC)
A look at the serious (and potentially dangerous) issue of medication switching (i.e.: name-brand to generic, generic to different generic, etc.). In many cases, those suffering from epilepsy are not aware their medication has been switched until they suffer a seizure after being seizure-free. The Epilepsy Foundation is advocating against switching without patient/physician consent.

Greg Grunberg Video: Epilepsy Awareness and Seizure Control

Epilepsy Public Service Announcement (video)

VISIT THE EPILEPSY FOUNDATION OF FLORIDA WEBSITE - Here you'll find contact information for our offices in Florida, as well as information on support groups, medical services, prevention and education programs and the many other services we offer.

La Epilepsia: Rechazo social, carga secreta (video)

EPILEPSIA - LA CRISIS OCULTA DE LA SALUD EN LA FLORIDA: Además de los servicios medicos, los programas de asesoría y el entrenamiento para el cuidado de la salud, la educación, el servicio comunitario y los profesionales corporativos, la Fundación es el principal defensor de los derechos y necesidades de las personas con epilepsia y trastornos convulsivos a nivel local condal y estatal. (video)

Good Morning America examines the issue of medication switching. It's an informative piece but still leaves the impression that there is something that can be done to prevent switching - which unfortunately may not be true in all cases.



BECOME A FAN OF OUR FACEBOOK PAGE: Epilepsy Foundation of Florida

Epilepsy Foundation of Florida on MySpace

Follow us on Twitter (www.twitter.com/EFOF)



Epilepsy Foundation of Florida
Epilepsy Foundation of Florida
Promote Your Page Too

Discussion Forum

Comment Wall

Comment

You need to be a member of Epilepsy Foundation of Florida to add comments!

Comment by Juan Vega on January 11, 2014 at 3:59pm

Hey guys! i am currently looking for a insurance company. Now with the obama care change, i dont know where to start and what to look for in the policies. What i do need is a company that would pay the most of my brand meds. Can anyone give me a hand here?

Comment by Kristin Wright on January 1, 2013 at 9:21pm

Has anyone been referred to Shands? If so what should I expect my first appointment?

Comment by Annette on October 12, 2012 at 4:58pm

I've had a number of complex partial seizures this week alone. It can be a challenge since Fall weather will effect the number of seizures I have on a daily basis. If you live in the Tampa, FL area, I'd  love to talk with you about these issues, and what you experience and how you and your family cope with your seizure activity. There is a TGH Epilepsy Support Group just for this. I attend it. I'd love to meet some others like me. Here is the info: http://www.tgh.org/sg.htm#q18

Comment by Heather on January 20, 2012 at 9:44am

Florida Walks 4 Epilepsy:

Vero Beach: February 11 at RIVERSIDE PARK www.EpilepsyVero.com

Gainesville: March 24 at KANAPAHA PARK (7400 SW 41st Place, Gainesville) vww.EpilepsyFLA.org

Lakeland: March 24 at LAKE HOLLINGSWORTH 813-374-8907

Seminole: March 24 at LAKE SEMINOLE 813-374-8907

Jacksonville: March 31 at MEMORIAL PARK (1620 Riverside Ave., Jacksonville) vww.EpilepsyFLA.org

Miami: April 14 at CRANDON PARK (6747 Crandon Boulevard, Key Biscayne) vww.EpilepsyFLA.org

Broward: April 15 at HOLLYWOOD BEACH (3601 N. Ocean Drive, Hollywood) vww.EpilepsyFLA.org

West Palm Beach: April 21 at JOHN D. MACARTHUR BEACH STATE PARK(10900 A1A, North Palm Beach) vww.EpilepsyFLA.org

Orlando: April 21 at CYPRESS GROVE PARK (290 West Holden Ave., Orlando) 407-422-1416

Stuart: April 22 at FLAGLER PARK(201 SW Flagler, Stuart) vww.EpilepsyFLA.org

Daytona: April 28 at MARY MACLEOD BETHUNE PARK (6656 S. Atlantic Avenue, New Smyrna Beach) vww.EpilepsyFLA.org

Comment by Laurel on October 27, 2011 at 12:27pm

Does anyone know of a good Neuro in Pensacola? My 3 yr old has epilpesy and we are moving there from over seas.

 

Comment by Heather on October 17, 2011 at 3:53pm
FL Events for National Epilepsy Awareness Month -

OCTOBER

October 18:  HAPPY BIRTHDAY EFOF – 40 year anniversary
October 26 & 27: 2nd
Annual Historical Ghost Walk for Epilepsy through old St. Augustine
http://GhostWalk.kintera.org/Epilepsy2011

NOVEMBER
1st Friday Art Walk in St. Augustine: November 4th Bake Sale 4
Epilepsy@
King Street & Granada Street across from Flagler College in front of Bank of St Augustine

Penny a Pound, Power Clean Lift-a-thon:
November 5th at Athlete Development Center, Jacksonville

2nd Annual Naples Walk for Epilepsy: November 12th at North
Collier Regional Park, Naples
http://bit.ly/SWEpilepsyWalk

Gifts with Humanity VIP Shopping 4 A Cause night:  November 26th at Gifts with Humanity in Edgewater, FL

Epilepsy Awareness Month / “Let’s Talk About It” Events
Sponsored by Lundbeck

http://EpilepsyFla.org/

Daytona - Nov 1 – Dinner for Clients and consumers at Caribbean Jacks in Daytona Beach, FL with Dr. Ralph Zwolinski speaking

Naples – Nov 2 – Dinner for consumers at Hampton Inn & Suites in Estero, FL with Dr. Pedro Hernandea-Frau speaking

Miami -Nov 3 –  Client and Partner dinner at Renaissance in Miami, FL with R&R Health Care and Dr. Serrano speaking

Broward - Nov 4 - Client and Partner dinner at Sunrise Civic Center in Sunrise, FL  for Clients and consumers

Gainesville - Nov 8 - Dinner for Clients and consumers at Napolitano’s in Gainesville, FL with Drs. Carney and Eisenshenk speaking

Pensacola – Nov 8  - Client and Partner dinner at Landry’s Restaurant in Pensacola, FL with Dr. John Axley, Adult and
Child Neurologist speaking

Palm Beach - Nov 9 - Physicians and staff dinner at Season’s 52 in Palm Beach, FL

Stuart - Nov 10 - Client and Partner dinner at Eagle Marsh Country Club in Jensen Beach, FL

Jacksonville - Nov 17 – Client and Partner dinner at Shand’s Twin Towers in Jacksonville, FL with Dr. Tatum speaking

Comment by Michelle on September 3, 2011 at 12:50pm
i just moved to daytona beach fl. from erie pennsylvania. big change especialy in weather.
Comment by Heather on March 18, 2011 at 7:37am

Everyone has a Brain and could be affected with it and Anytime, Anywhere!

www.EpilepsyFLA.org

All Registrations are Free and start at 8am, all Walks start at 9am.
Please Pass it on :-)

March 27th - Stuart @ Flagler Park (201 SW Flagler)
April 2nd - Palm Beach @ John D. MacArthur Beach State Park (10900 A1A, North Palm Bch.)
April 3rd - Broward @ Hollywood Beach (3601 N Ocean Dr., Hollywood)
April 9th - Volusia/Flagler @ Mary McLeod Bethune Park (6656 S Atlantic Ave, New Smyrna Beach)
April 9th - Gainesville @ Albert "Ray" Massey West Side Park (1001 N W 34th St)
April 10th - Miami @ Crandon Park (6747 Crandon Blvd, Key Biscayne)
April 16th - Jacksonville @ Memorial Park (1620 Riverside Ave)
May 14th - Ft. Walton Beach @ Beasley Park (Okaloosa Island)

 

Please Pass it on :-)

Comment by Heather on September 16, 2010 at 12:33pm
November 13th - Brevard County 1st Annual Epilepsy Walk You can register here
http://www.brevardepilepsywalk.com/ or call 407-422-1416 for questions. Come out and meet people with a passion for Epilepsy!
Comment by Steven's Mommy on September 16, 2010 at 11:47am
Brevard County is having their walk on November 13th at Gleason Park.
It is listed on epilepsy florida and epilepsy association of central florida too.
 

Members (78)

 
 
 

Terms of Service Update 6/4/2012

We have updated our Terms of Service for eCommunities Groups.

Events

December 2014
SMTWTFS
123456
78910111213
14151617181920
21222324252627
28293031
       

© 2014   Created by EF Admin.

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service