Started by Linda Pass. Last reply by Chris Pinto Jun 6. 4 Replies 0 Likes
Do any one of you experience guilty feelings for all the pressure you put on other people and wish you could return the favor? I am 50 and live with my mother who is all too eager to help me…Continue
Started by danny midwest. Last reply by Rena99 Apr 5. 2 Replies 0 Likes
Depression seems to be all to rampant with epilepsy,I hate it,exercise really does help but I still dread spring coming I like it dark,weird huh?it never was this way before.Continue
Started by alliepeanut. Last reply by Judy B. Mar 21. 18 Replies 0 Likes
I spend most of my days home alone and depressed, my children are now grown and have moved out of the house, my fiancé who I live with works weekdays. I started having seizures a few years ago. I'm…Continue
Started by kaylee haers. Last reply by Jennifer Jacobs Dec 8, 2012. 3 Replies 0 Likes
Ever since ive been diagnosed its like my world is slowly turning. I get angry at nothing and some days just bust out crying wonderi g why me. I feel that with this page i can better understand ways…Continue
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Terrance think we have all felt that way at one time or another but we don't have to get even with them they will get judged in the end by a much more powerful force and than how are they going to feel? Have a wonderful day all!
Comment by Terrance Lee Fields on June 10, 2013 at 8:33pm Sorry to hear friends left you, My opinion is there the ones need to have Ep,lots of times I wish it would happen,shouldnt think that but I do, hope things get better for all of you
Terry
Tiffany don't be suprized if an Mri isn't the next thing done because it is a stronger test to show what is going on. I wish you the best I know it isn't any fun but answers are out there but could take some time to find out. In the meantime remember we are here for you!
Chris FB is the last place to discuss Epilepsy and we have all lost friends because they think we are contagious or going to embarrass them well if you think about it they are not true friends if they turn their back on you because of this so join an Epilepsy support group and you will find friends who understand. And we are always here if you need to talk.
Comment by Tiffany Huxhold on June 7, 2013 at 5:22pm Hello Everyone!!! Well as I found out from my EEG that it is very abnormal and so I have to go in for a shorter one and find out a few other things and see what is going on with my brain because it feels like I have Nascar always going on, which is not fun and then not being able to function on a daily basis is not my idea of fun so we will see what happens.
Comment by Chris Pinto on June 6, 2013 at 2:15pm It seems now that I have started to discuss Epilepsy of FB It seems I have lost friends.There are so many factors here. I was seizure free since '97 now I am recently having complex/partial sz's and cant drive. So I went for a walk and saw a empty park bench. Its how I feel now. I saw someone else on here said the same thing. I still have ones who are supporting me;but they dont truly understand until they go thru one. Very dissapointed..
Tenesha It is always rewarding to hear someone say Thank you and I am glad I was able to help. Just remember I am here if you need to talk and get things off your mind and I wish you the best of luck!
Ashleigh I know what you mean but don't give up or think of ending it all because there are still things you can do even if you lose your hearing. I have a woman who lives in my building who is completely blind and as much as I would hate losing my sight I watch her and am amazed at what she does. She goes for walks and recognizes people when they speak to her and there is another lady who is deaf but we talk through sign language and she probably would like to hear but also hasn't given up and I respect those people. They are using the other gifts God gave them to keep going on in life. I don't like having Epilepsy but I will not give up. I understand it is aggravating we all know that and wonder why we cannot find the answer but look to the other things you can do and work on those and you will see a difference. Stress causes seizures and right now you are stressed. Take control of things don't let it take control of you!
Thank-you Tammy, I am still looking for work and my doctor is still trying to figure out what to do to control my seizures but your words of encouragement did give me some hope where there did not seem to be any.
Comment by Ashleigh Maria Louise on June 1, 2013 at 7:12pm I've been pretty good with dealing with my epilepsy through the years, but now I'm just done.
I've started to lose control of my left hand, so I can hardly use it, even just to pick things up. Alongside the losing control of my left hand (from localized seizures according to my Neuro) I've started to lose my hearing.
We didn't think the hearing loss was due to seizures at first, but my neuro has confirmed that it seems to be the cause. It's random, I will randomly lose either hearing in one ear or hearing in both for x amount of time. My neuro & psychologist have tried to prepare me for the fact that it may become permanent hearing loss, leaving me deaf.
I work as a musical theatre/English instructor, I do lots of theatre & live singing events, in short a lot of things that involve my ability to hear. I haven't been taking this well at all. It's hard enough to deal with the seizures I've had for a while any ways, but I just haven't been able to deal with all of this. I'm just feeling done, I am done taking all the pills, done with all the needles, done with constant EEG's & MRIs, done with missing work from seizures, done with crappy side effects, just done with everything. Honestly, I feel like if a car was heading towards me and I had a chance to move, I wouldn't move, I'd just let it hit me.
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