Epilepsy Foundation

Ken

'Epilepsy & Behavior'

Information

'Epilepsy & Behavior'

Epilepsy & Behavior, a professional medical journal, presents original peer-reviewed reports and reviews that pertain to the behavioral aspects of epilepsy. The Epilepsy Foundation and Epilepsy & Behavior have partnered to provide these articles.

Members: 176
Latest Activity: 1 day ago

Introducing Article Summaries with Dr. Autumn Klein
We are pleased to welcome Autumn Klein, MD, who will be authoring exclusive special summaries and comments on select articles from Epilepsy and Behavior. Dr. Klein is a neurologist at Newton Wellesley Hospital and Brigham and Women’s Hospital in Massachusetts and has been an instructor in neurology at Harvard Medical School. She has a passion for teaching and for epilepsy research. We look forward to her participation and welcome your feedback to her summaries and comments.

About the Epilepsy Foundation and Elsevier Partnership
Epilepsy Foundation President and CEO, Eric R. Hargis, said, "Families affected by epilepsy are in great need of information to comprehend and cope with the onslaught of issues that come with the condition. The Foundation's website is among the most authoritative and highly trafficked Internet sites for epilepsy and serves as an excellent channel for getting this new information directly to affected families as soon as the scientific reports are published."

According to Steven C. Schachter, MD, the journal's editor-in-chief and member of the Epilepsy Foundation Board of Directors, "Epilepsy & Behavior publishes state-of-the-art research that really matters to the lives of people with epilepsy and their families. Bringing this information directly to people affected by seizures and the behavioral and cognitive issues associated with epilepsy will have a tremendous impact on improving their lives."

Discussion Forum

Ken

Conversations between community-based neurologists and patients with epilepsy: Results of an observational linguistic study 1 Reply

READ THE ARTICLE Article Summary from Dr. Klein: This study observed neurologists and epilepsy patients during office visits and interviewed them afterward to identify gaps in communication. Side ef…

Tagged: Mood, Behavior, Comorbidities, Misalignment, effects

Started by Ken. Last reply by Southie ~ Sharon Dec 9.

Ken

ARTICLE: The experience of seizures after epilepsy surgery

READ THE ARTICLE Article Summary by Dr. Autumn Klein: This study asked 15 patients one year after anterior temporal lobectomy how they felt about their seizures recurring. Two thirds of patients were…

Tagged: recurrence, Psychological, adjustment, Psychosocial, Seizure

Started by Ken Dec 7.

Ken

ARTICLE: Consensus statement: The evaluation and treatment of people with epilepsy and affective disorders 1 Reply

See Article. ABSTRACT: Affective disorders in people with epilepsy (PWE) have become increasingly recognized as a primary factor in the morbidity and mortality of epilepsy. To improve the recognitio…

Tagged: Intractable, Suicidality, epilepsy, Temporal, Antidepressants

Started by Ken. Last reply by antoinette brandt Aug 22.

Ken

ARTICLE: Vagus nerve stimulation and magnet use: Optimizing benefits

See Article. ABSTRACT: More than 10 years ago, the vagus nerve stimulator became the first device approved by the Food and Drug Administration for use in persons with epilepsy. The vagus nerve stimu…

Tagged: Seizure, Protocol, Neurostimulation, stimulation, Vagus

Started by Ken Aug 20.

Comment Wall

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Diane LaMorticella Comment by Diane LaMorticella on December 2, 2009 at 1:37pm
Antoinette,
I am sorry for the loss of your friends. Pray for them, they are in a good place, and not suffering. We are here if you want to talk about them. Love, Diane
Carlton Zeigler Comment by Carlton Zeigler on December 2, 2009 at 12:16pm
Antoinette

"Our friends are our needs fulfilled." The loss of a friend is a loss of part of ourselves. Any such wound requires healing. Just as you remember the source of that scar on your arm, but no longer feel the pain of the fresh wound; so too will the pain of this wound be remembered while no longer hurting.

I am so sorry for your loss.
antoinette brandt Comment by antoinette brandt on December 2, 2009 at 9:04am
Lisa and Carlton,
I lost two new friends last week. I can't stop crying for nor being able to contol my emotions. I hope your bruises heal and I can learn from mine somehow. Perhaps they weren't such good friends to start with? But we enjoyed music and other stuff I could not share for decades. I felt normal for a change. I still can't believe it happened. I am still groggy and paranoid after it all.
Carlton Zeigler Comment by Carlton Zeigler on December 1, 2009 at 8:06pm
Lisa Renee

I know how you feel. I broke the towel bar in my bathroom.
Lisa Renee Greenwood Comment by Lisa Renee Greenwood on December 1, 2009 at 7:11pm
I had a seizure a few weeks ago in the shower. I bit my tongue, lost consciousness, vomitted a couple of times, fell, got several bruises on my arms, legs, back, and my neck is still killing me. I think I got whiplash from where I fell. I still have scratches. My Mom said it looked like I broke the bath tub faucet.
Roxanne Comment by Roxanne on October 15, 2009 at 5:57am
Katie Curik, oops if I spelled her name wrong, is going to do a story on 60 Minutes about epilepsy. It's Oct. 25th.
Diane LaMorticella Comment by Diane LaMorticella on October 12, 2009 at 2:03pm
this is infantile spasms awareness week, www.infantilespasmsinfo.org
antoinette brandt Comment by antoinette brandt on October 12, 2009 at 12:42pm
Give him a tickle from me! This is such good news!
Diane LaMorticella Comment by Diane LaMorticella on October 12, 2009 at 12:27pm
THanks Antoinette,
My little guy was diagnosed at the age of 14 months with SPD (sensory processing disorder) it was just a couple months after we had his epilepsy diagnosed. He has done pretty well with some help from our Occupational therapist. We were in the NJ early intervention system for two years, and the OT we had was great with him!!! Joseph has had a "sensory diet" and that with meds for the seizures has helped him. He actually cries now during a blood test, he is becoming more sensitive. He is also ticklish now! When he was first diagnosed with epilepsy and started Phenobarbital, he was not ticklish at all!! Now we have lots of fun rolling around on the floor and tickling each other!!! I think we were lucky to get him help as early as we did. Diane
Jeffrey Rick Nelson Comment by Jeffrey Rick Nelson on October 12, 2009 at 11:09am
Yeah,...It really tripped me out. As I've had thousands of seizures over the past 20 years. At least one a day....usually more. But, only two detected Grand Mals in my life. Never really getting hurt or noticing accidents though since they are all partials, and I just sit and stare or stand and waver. Most my day, I'm either painting at my easel, or playing my banjo or guitar. Not too much that can hurt me I guess other than falling if it ever happens again. But, I'm gonna' be sure and eat my hot food on a table next time around! Though, all this talk about pain etc. has made me think about many of the siezures I've had that I do remember. As I mentioned, I'm always found either playing music or painting.....and one thing I can remember is that seizures stop my playing right of the bat! It's like I find myself looking at my hand that makes the cords and notes and it doesn't even seem like my hand anymore! Total out-of-body experience. I remember several times this has happened where I'm suddenly searching for strings that don't seem to be there and I have a hard time feeling or sensing them at all. Same thing with my paint brushes. I can remember...in my half-concious state of course, standing at my easel, seizing, staring at the images on canvas and not being able to feel my brush. Just standing there you know? Wonder if that has anything to do with pain? I've been doing real good lately. Only one or two a day for a couple of months. At it's worst I was up to 20 a day. Seemed like I had one every half hour. I remember feeling totally out of my mind because I was always "waiting for the next one". Even now they are huge out of body experiences for me. Almost like leaving yourself and seeing the world from a completely objective point of view. Guess that would say something about not noticing any pain. But, anybody get these kind of experiences? Jeff
 

Members (176)

Ken Carlton Zeigler antoinette brandt Violet Diane LaMorticella Southie ~ Sharon robb phillips Brainskip Kari Lynne Brauer Samantha Walker Linda Mitchell Liz Jeffrey Rick Nelson Angela Jared Gonyer anpresco Ramona Louise Marilyn Strauss Jennifer Deanna Mayfield Scott Vanessa Beth Goodhouse Melissa Bryan Daniel Leonardich MrsLinkgetter libby brisman Lisa Vitagliano Dee07
 
 

Forum

Annette Davis

Is this a simple partial seizure? 3 Replies

Started by Annette Davis in Parents Helping Parents. Last reply by Annette Davis 3 minutes ago.

Irishmum

Shaking during a partial seizure? 37 Replies

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problems with meds (Depakote) 13 Replies

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