EPILEPSY -LETS TALK ABOUT IT !!!

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http://www.epilepsyletstalkaboutit.com

Website: http://www.epilepsyletstalkaboutit.com
Location: http://www.epilepsyletstalkaboutit.com
Members: 3
Latest Activity: May 3

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EPILEPSY - LETS TALK ABOUT IT !!! is a website about Epilepsy and persons suffering with Epilepsy. We aim to Raise Awareness about Epilepsy - its effects on our daily lives and effects of Anti Epileptic Drugs ...including any issues and problems you are coping with. We at EPILEPSY - LETS TALK ABOUT IT !!! connect and support people through a range of charitable services, including our online epilepsy forum, epilepsy campaigns and awareness raising, epilepsy information and website.

Discussion Forum

SEIZURE BITE STICKS ON AMAZON

Started by Monsoon. Last reply by RANDY SHERMAN May 3. 1 Reply 1 Like

Dear FriendsI put this complaint on Epilepsy Action UK . We have had over 500 reads on my complaint and many readers have put comments to Amazon. The good news is that UK's best Epilepsy related…Continue

SEIZURE BITE STICKS ON AMAZON

Started by Monsoon Mar 27. 0 Replies 1 Like

CHOCOLATE AND COPING WITH MOOD SWINGS

Started by Monsoon. Last reply by Monsoon Feb 9. 2 Replies 1 Like

I have never been a chocolate person - in fact Never Ever...I have now been advised by a Nutritionist / Doctor to eat 70% or higher percentage chocolate to help with mood swings with Keppra. He also…Continue

KEPPRA AND WEIGHT LOSS...

Started by Monsoon Jan 18. 0 Replies 1 Like

Has anyone else experienced weight loss, loss of appetite and weakness with Keppra. I've lost 4kg since November 2012...Does this continue and how did you cope ? I try and eat anything - that is - if…Continue

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Comment by RANDY SHERMAN on March 3, 2013 at 8:12pm: Happy to hear the new Monsoon . I too wrote to AMAZON . I only had trouble trying to write to , EBAY . I don't have an account w/ them I no matter how hard I tried They wouldn't let me on the customer / cantact page w/ out having a password

Comment by Monsoon on March 3, 2013 at 6:49pm: Thanks ever so much Randy for bringing this for posting this here and letting me know about this ridiculous product !!!...I had over 145 reads on my Epilepsy Action page about this in the UK. And some members wrote to Amazon and got replies which they shared. Well Done !!!

Comment by RANDY SHERMAN on March 1, 2013 at 8:14pm: I'm very serious . Look up seizure bite sticks on the two sites and you'll see what they look like

Comment by Monsoon on March 1, 2013 at 6:48am: Are you serious ? we are not animals (though I love animals)...will definately report to Epilepsy Action UK as well.

Comment by RANDY SHERMAN on March 1, 2013 at 1:47am: Monsoon
Do you or any friends you know w/ EPILEPSY , by any chance a member or have account w/ AMAZON OR EBAY ? If so ,you many want to write a bad report to them. The are trying to sell products called seizure bite sticks

Comment by Monsoon on January 25, 2013 at 10:19pm: Well done.. will check it out....

Comment by RANDY SHERMAN on January 24, 2013 at 6:09am: i JUST A YOUTUBE VIDEO SENT TO MY FACEBOOK WALL.

I could help people learn the basics and first aides about EPILEPSY

the title of it is , UNDERSTANDING AND ASSISTING PEOPLE WITH EPILEPSY

CHECK IT OUT .I even sent it to friends and families on facebook

Comment by Monsoon on January 9, 2013 at 2:35pm: I am so sorry to here that. Even small seizures can leave one feeling weak..and I really hope you are taking care of your self. Take your meds and drink something with sugar or eat a banana. I understand the symptoms well. I had a bad seizure myself during the holidays and was unwell even inspite of my meds.

Comment by RANDY SHERMAN on January 9, 2013 at 7:41am: Yes I'm still doing well although I had a few short seizures a couple hrs. before now. They were very small ones . I even took my meds , nad they still happened.
One thing I have learn thru life of having EPILEPSY , is that everything s a risk. No matter where we are or what we are doing . There are minor risks to serious consequences . It so unpredictable when or where it happens . This is just something we have to deal with 24/7 .

Comment by Monsoon on January 8, 2013 at 11:53pm: Yes several times. In fact each time I have a seizure and come around I feel I could have very easily touched death and come back. We can end up having a seizure anywhere - it's scary. You are so correct. Hope you are keeping well.