Epilepsy Awareness

Information

We all need suggestions to spread the word and we all have ideas. so lets share the ideas and help make more awareness

Members: 61
Latest Activity: May 13

Welcome

Welcome to my group! This group is meant to share ideas on getting the word out. Please keep any negative comments to yourself. So lets help each other out and keep people aware

Discussion Forum

My daughter has epilepsey

Started by Amy Ramirez. Last reply by Alainna Robles Apr 16. 4 Replies 0 Likes

My baby girl is 4 and she has seizures. they first stared out as absent seizures but now she lightly convulse with having them. I am all new to this i have never had to to deal with this before and i…Continue

new foundation fund raising ideas

Started by Chris Warner. Last reply by jaocrece buford Feb 2. 3 Replies 3 Likes

I WANT PEOPLE TO KNOW IDEAS DON'T STOP EVER. I would appreciate if anyone could throw ideas out as fundraising and keeping things going ou. I might be setting up my own foundation soon. So keep the…Continue

Just a thought

Started by Shelly Lomax. Last reply by Chris Warner Nov 12, 2012. 1 Reply 1 Like

Hi, my name is Shelly. I wrote a letter to the editor of our paper, explaining that this was epilepsy awareness month, and a little information about epilepsy.... just a thought.Continue

View All

Comment Wall

Comment

You need to be a member of Epilepsy Awareness to add comments!

Comment by Darren Wright on May 13, 2013 at 8:21pm: My latest blog,on memory and epilepsy. It has been of concern to me lately, as it may of been to you...enjoy

http://thewrightwaydarren.wordpress.com

Comment by RANDY SHERMAN on May 8, 2013 at 4:29am: WARNING . The FDA want to let anyone who is on POTIGA to know that it can cause BLUE SKIN DISCOLORATION and pigment changes on the retina of the eye . the report have found that people on the meds for 4 yrs. were examined and had this eye problem .People who had short term have not been tested .
I I any of you are on this or any of you know someone one this med , please warn them

Comment by Angela Doescher on May 2, 2013 at 12:30am: We have been lucky to get a lot of news press here in our area. My son raised money to get a service dog. We had to raise $13,000, we raised $14,800 in one night using Epilepsy as the main focus, and more on other fundraisers.

I am now working to get Google to use a doodle I made- You can read more on my son and all the awareness we have done so far on his site: http://www.Strydersstory.com

The please is here: http://strydersstory.com/dear-google-doodle-team/

and the doodle:

Would love if we could spread this around to get Epilepsy in front of everyone.

Comment by RANDY SHERMAN on April 20, 2013 at 5:33pm: LAINNA

If gthe cancer society is going to feel attacked ( not saying they will or not) then let them whine and complain like children . Hope your newspaper letter gets your info out.

Comment by Alainna Robles on April 19, 2013 at 3:10am: Hope no one reads it wrong, like an attack on the Cancer Society. That wasn't my intention. Obviously the newspaper found it interesting, otherwise they wouldn't have called me to verify my info.

Comment by RANDY SHERMAN on April 19, 2013 at 3:00am: Alainna,

I hope everything works out w/ the newspaper . Anything that we can get out can help

GOOD LUCK !!! :)

Comment by Alainna Robles on April 19, 2013 at 2:04am: I think my letter to the editor will be published in our paper because I got a phone call from the newspaper this afternoon verifying my letter to the editor. Think my parents will be surprised to see I sent something in.

Comment by Alainna Robles on April 18, 2013 at 3:30am: I sent a letter to the editor saying they should use one color for cancers, and that I have supported them in the past via participating in their "Relay For Life," but that Epilepsy is so misunderstood and that purple is for Epilepsy Awareness. My title was "No offense to American Cancer Society or 'Relay For Life.'"

Comment by RANDY SHERMAN on April 18, 2013 at 2:27am: I understand your frustration ALAINNAA,

The CANCER society/org whatever they go by need to use 1 color for all cancers. They can keep the pink for BEAST CANCER , but all the other cancers shout be one color

Comment by Alainna Robles on April 18, 2013 at 1:22am: the city I live in wants to paint the downtown businesses purple for cancer(there was an article about the "Relay For Life" in our paper today, and the American Cancer Society wanted the downtown painted purple as well, I have nothing against them & I've done the "Relay For Life" before, but I think Cancer has enough colors-they've got pink for breast cancer, and other colors for other types) I responded on the newspaper's website(www.journaltimes.com) that it should be painted purple for Epilepsy too, as it is the color of Epilepsy Awareness.