Epilepsy Foundation

Christians with Epilepsy

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Christians with Epilepsy

As Christians with Epilepsy We believe in Romans 8:28
And we know that ALL things work together for good to them that love God, to them who are the called according to his purpose.

Members: 488
Latest Activity: on Thursday

Discussion Forum

Epilepsy as an excuse

Started by Vicki Schofield. Last reply by Suzanne Porter Apr 11. 3 Replies

Family Rejection

Started by Suzanne Porter. Last reply by Suzanne Porter Apr 1. 9 Replies

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Comment by Michael on August 21, 2012 at 6:34pm

I ask prayer please for a precious 10 month old baby who has 4 plates in her skull that were not supposed to fuse until she was 2 y.o. Two of them have already fused though and she is going in for neurosurgery tomorrow (8/22/12). Her father is a pastor and he and the family need your prayers also.Thank You. I am so glad we can rest in a sovereign and gracious Heavenly Father.

Comment by Carlton Zeigler on August 20, 2012 at 12:26am

Kari, 

I would love to live your farm life for a day.

Comment by Kari Lynne Brauer on August 19, 2012 at 10:02am

Enjoy this beautiful Sunday with the LORD, family and friends!

James 5:13-16

Comment by Kari Lynne Brauer on August 15, 2012 at 9:56pm

Back to school! Oh my goodness, where did the summer go?! My son is still working full time out at the farm. We haven't even gotten a chance to go school shopping yet! By the time he gets off work, it takes an hour to get to town, then most all of the stores have closed by then. Maybe this weekend. 

Comment by Carlton Zeigler on August 11, 2012 at 10:58pm

I do not doubt that i have the character to raise a child properly.  I have long been told, even by those with children, that I have a "way" with kids.  I will compliment a friend on something their child did or said, and they will respond "... I think he/she got that from you..."

I did not tell my friends about my epilepsy until I was twenty six years old.  They were not afraid of my condition because I was know for a few particular mannerisms.  The mannerisms had been a little "joke" for years.  I explained that the mannerisms were actually complex partial seizures.  They realized that they had witnessed dozens of these events over the years, and they simply did not fear them at all.  I continue to thank God for my friends.

When my friends started having children, none of them ever showed any fear of letting me hold, baby sit, or care for their children in any way.  

On one occasion, an eight year old said "...Uncle Carlton, why don't you have a car?..." Before I could try an explain, a twelve year old, of another friend, said "Because he has seizures".  I was proud that he had cared enough, for me, to listen, to remember, and to have it not matter.

The problem is that my condition would make me a poor provider.  My epilepsy has really held me back in life.  My condition is worsening with time. For most of my life I have dealt with RTL epilepsy (right temporal lobe).  I had two surgeries and a VNS. In the summer of 2010 we discovered a second focus on my opcipital lobe.  This summer we have found that seizure are now originating on my left temporal lobe.

It is only August, and I have already had four hospitalizations of five nights, or more.  These were all ER admissions.  The ER pages my epileptologist (even late on a Sunday night), and she tells them to admit me.  Sometimes  this means that I must be transferred from one ER to my doctor's hospital.

One cannot be this unstable and provide for children.

By the way Kari

You are very kind.

Comment by Kari Lynne Brauer on August 11, 2012 at 8:08pm

Nonsense Carlton!

You would make a great father! My kids have all seen me have all kinds of seizures. They have seen in the best of times and the absolute worst. The are great help are understanding.

Don't ever doubt yourself, look how many children and people you have and are helping.  You will make a great father!

 You can share the comment with Julia then. Keep your chin up and

SMILE!

Comment by Carlton Zeigler on August 11, 2012 at 7:31pm

Kari

Perhaps your words are better suited for me.  I have been a volunteer teacher (of the children), in my church, for more than twenty five years.  I was a public school teacher for two years.  I was a volunteer summer camp counselor, at a camp for kids with epilepsy.  As my married friends had children, their kids would call me "uncle Carlton".  They still honor me with the title, even in their late teens.

People have long said that I am great with children. Still, perhaps my epilepsy would have made me a lousy father.  It saddens me to think so, but perhaps God is just protecting some children from the miseries that I would have brought upon them in fatherhood.

He knows best.

Comment by Kari Lynne Brauer on August 10, 2012 at 11:28pm

SMILES!

Julia,

That's because Mr. Right is still needing to be perfected for you.

Prince Charming, just won't do!

SMILES!

Comment by Julia McCoy on August 10, 2012 at 11:01am

Kari, I attended 7 weddings in one year, caught the bouquet in one and am still single 25 years later.  As Carlton said, so much for superstition. lol

Comment by Kari Lynne Brauer on August 10, 2012 at 10:21am

Those are wonderful praises!

Our God is a wonderful, praiseworthy, most highly to be exalted!

Amen

 

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