Epilepsy Foundation

Christians with Epilepsy


Christians with Epilepsy

As Christians with Epilepsy We believe in Romans 8:28
And we know that ALL things work together for good to them that love God, to them who are the called according to his purpose.

Members: 499
Latest Activity: Nov 19

Discussion Forum

loving someone who refuses meds for epilepsy

Started by Beverly Mitchell. Last reply by Terrance Lee Fields Jun 30. 8 Replies

My thoughts on forgiveness - sept 30 2012

Started by Dave. Last reply by Tammi Zavardino Jun 29. 2 Replies


Started by Vicki Schofield. Last reply by Vicki Schofield Feb 21. 4 Replies

Comment Wall


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Comment by Jenny Hayward on November 19, 2015 at 10:31pm

I dont remember if I asked this before or not so here I go.. I dont know if anyone here experiences this or if there is a name for it. My Neurologist rolls his eyes if I talk about it.. Okay, with me at least.. When laying down to go to sleep or just waking up; does any one feel like they are free falling then your whole body jerks or just on side? I have heard of one other guy experiencing this that has epilepsy. Is this a form of a seizure? Doctors just look at me funny and say it's nothing but it has happened a few times. Can any one help?

Comment by Vickie Kelley on August 30, 2015 at 2:01pm
I, also, will be praying for you!
Comment by Jenny Hayward on August 30, 2015 at 12:00pm

I will be praying for you Richard! God Bless you

Comment by Richard Davis on August 30, 2015 at 12:14am

It's been a long time for me too. A lot of things happen, I get notifications on the email when someone put a note on here, so I've come back. I had to go for a neuropsychological exam 2 weeks ago to see how my memroy is and how much damage has happened in the last 18 months since the dangerous seizure, when they said if I have another one l probably will not live after it. They changed the meds to slow release Lamictal, increase it and backed down on the Keppra. They said after a 6 day EEG, that the Keppra was doing no effect at all. Since then I started having the strangest hour long auras, and various effects, but since then I havent had a seizure. I've been thanking God every day and at the same time pleading it wont happen again. I was in the hospital 7 wks ago they ran a test and found that the blood clot has returned and its so serious that I will have to be on blood thinner the rest of my life. I've been going weekly to have it leveled. I go for a 6 month test in 3 wks for the cancer and they said if it's negative I wont have to be bake but once a year for the next 3 years, then thats when it's safe. They said the exam for epilepsy will tell if I'm able to get help for art business at home since the seizures caused so much damage that I'm not able to work for long periods of a time without rest for the brain, time will tell. I have read all your reports, sad and glad to read your lives. We'll keep praying 

Comment by Carlton Zeigler on August 30, 2015 at 12:11am


Thank you.  Now I understand.  I have had that twice.

Comment by Tammi Zavardino on August 29, 2015 at 10:57pm

If there is one thing we should do it is put our faith and trust in God and he will help if we ask. My prayers are with you all.

Comment by Tammi Zavardino on August 29, 2015 at 10:55pm

It's been a while since I have been on here but I know how everyone feels because I went through all that myself but we are not freaks or should not feel like there is no hope. I have done my share of thinking there is no hope but I no longer have the problems I did but when I see someone who has problems so often it makes me sad. I still have problems with not being able to work or drive but try to think of the good things I do have and strive to work on those. People can be very hurtful and there is not much we can do about that except educate them more so they understand instead of be afraid of us. I have gone through many medications and the side effects and it is never easy but I am determined to make the most of my life and things are getting better.

Comment by Jenny Hayward on August 29, 2015 at 6:28pm

Carlton, have you ever had an EEG? If so this is similar. The AEEG, is portable, you wear a back pack that is connected to all the wires that are connected to your head, you also are using an EKG, to monitor your heart. The AEEG can monitor your brain waves for 24 to 72 hours. I was on a 24 hour test. This way, the doctors can monitor all seizure activity with in the period of time. You also recorded/journal everything you do and the time you do it so the doctor can see what your brain does. Type in AEEG on google and it will explain all it does. Pat, no this crazy person is not related to me at all. She thinks any illness even a cold is caused by sin and is punishment. Or it is because you are possessed by satan because you're ill. My cause, she said I was possessed and needed to repent and have someone get some one to cast satan out because I was so sick. WHATEVER! no thanks. No, this whole insurance thing is a joke. It doesnt help anyone I know. You dont have it, you get charged (a cousin well several of them, were charged $600 to $1000 because they didnt have insurance through work, because they couldnt afford it.) I dont have it because it is too expensive and I cant afford it. Plus they CHOOSE who gets help if you have it. A friend of mine, had breast cancer while pregnant. The baby was dying and so was she. They took the baby early and told my friend they wouldnt help either one of them, they said they both were too sick to help. I was told if I was on the insurance I wouldnt get help because I have too many health issues. My Neurologist has gotten me some help with $$ through the hospital so that helps and trust me, I have seen both Neurologist's here and another specialist, and 2 other doctors here, and 1 Neurologist and doctors in California. My Epilepsy in itself is so complex, I dont react to anything, and my other health issues, same thing, they get worse if they treat it, and some issues we have no clue what it is. They are doing their best. I want to keep the Neurologist I have, I am doing better with him than I was years ago, with him, it isnt because he isnt trying. =) as for clinics, they suggested a Mayo Clinic in two other states. No money to do it and I have no one to go with me. So out of luck

Comment by Carlton Zeigler on August 29, 2015 at 5:27pm


Please don't take my outcome as typical.  I still have seizures after my resection.

Comment by Carlton Zeigler on August 29, 2015 at 5:24pm


(if I may call you Jenny)  I have never had an AEEG.  What is that one.

Blessings to you


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