Epilepsy Foundation

Christians with Epilepsy

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Christians with Epilepsy

As Christians with Epilepsy We believe in Romans 8:28
And we know that ALL things work together for good to them that love God, to them who are the called according to his purpose.

Members: 498
Latest Activity: Jan 14

Discussion Forum

loving someone who refuses meds for epilepsy

Started by Beverly Mitchell. Last reply by Stephen G Coombes Dec 8, 2015. 9 Replies

My thoughts on forgiveness - sept 30 2012

Started by Dave. Last reply by Tammi Zavardino Jun 29, 2015. 2 Replies

Insurance

Started by Vicki Schofield. Last reply by Vicki Schofield Feb 21, 2015. 4 Replies

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Comment by Jenny Hayward on December 1, 2015 at 9:22pm

Thanks Vickie and Carlton! I helped with two other projects with this college and one student got a B and the other student got an A plus. So with this paper and interview, I can only hope and pray that we can do as well! I never liked being interviewed about what I go through, but if it can help educate others on what we go through, then it is worth it

Comment by Vickie Kelley on December 1, 2015 at 8:49pm
Jenny,

Congrats. I did a similar thing when working at a college and an undergraduate student in psychology came out and interviewed me. She received an A plus on the report and ended up making the AP in the paper, I then received letters from people who had epilepsy or their children did. Congrats and wish you luck on the interview!
Comment by Carlton Zeigler on December 1, 2015 at 7:47pm

Jenny

I hope you do well.

Comment by Jenny Hayward on November 30, 2015 at 7:19pm

Sooo.. praying friends=strangers on this page.. =) I have been asked to be interviewed by a college student that has do to a 5 page report and interview on a medical issue. I got picked to tell about life with Chronic Migraines and also living life JME (Juvenile Myoclonic Epilepsy); and how it is trying to live without much help through treatments of medication's (being that I am allergic or having most side effects).. So silly as it may sound, pray for me please that I can tell our story of Epilepsy and help spread awareness! 

Comment by Jenny Hayward on November 30, 2015 at 7:13pm

Hey Stephen.. Thanks for your comment. I just wanted others thoughts. I have some Epileptic friends swear it was epilepsy and some swear it was sleep related and some doctors say both! haha So I was just was wondering what others thoughts and experiences were on this. I had one Neurologist say it was a seizure but the Doc I have now say it is sleep related. So.. who knows.. =) 

Comment by Jenny Hayward on November 19, 2015 at 10:31pm

I dont remember if I asked this before or not so here I go.. I dont know if anyone here experiences this or if there is a name for it. My Neurologist rolls his eyes if I talk about it.. Okay, with me at least.. When laying down to go to sleep or just waking up; does any one feel like they are free falling then your whole body jerks or just on side? I have heard of one other guy experiencing this that has epilepsy. Is this a form of a seizure? Doctors just look at me funny and say it's nothing but it has happened a few times. Can any one help?

Comment by Vickie Kelley on August 30, 2015 at 2:01pm
I, also, will be praying for you!
Comment by Jenny Hayward on August 30, 2015 at 12:00pm

I will be praying for you Richard! God Bless you

Comment by Richard Davis on August 30, 2015 at 12:14am

It's been a long time for me too. A lot of things happen, I get notifications on the email when someone put a note on here, so I've come back. I had to go for a neuropsychological exam 2 weeks ago to see how my memroy is and how much damage has happened in the last 18 months since the dangerous seizure, when they said if I have another one l probably will not live after it. They changed the meds to slow release Lamictal, increase it and backed down on the Keppra. They said after a 6 day EEG, that the Keppra was doing no effect at all. Since then I started having the strangest hour long auras, and various effects, but since then I havent had a seizure. I've been thanking God every day and at the same time pleading it wont happen again. I was in the hospital 7 wks ago they ran a test and found that the blood clot has returned and its so serious that I will have to be on blood thinner the rest of my life. I've been going weekly to have it leveled. I go for a 6 month test in 3 wks for the cancer and they said if it's negative I wont have to be bake but once a year for the next 3 years, then thats when it's safe. They said the exam for epilepsy will tell if I'm able to get help for art business at home since the seizures caused so much damage that I'm not able to work for long periods of a time without rest for the brain, time will tell. I have read all your reports, sad and glad to read your lives. We'll keep praying 

Comment by Carlton Zeigler on August 30, 2015 at 12:11am

Jenny

Thank you.  Now I understand.  I have had that twice.

 

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