Epilepsy Foundation

Catamenial Epilepsy


Catamenial Epilepsy

Thought this would be a good place to express our feelings and experience with catamenial epilepsy.

I have catamenial epilepsy and my seizures come from my left temporal lobe.

Location: Los Angeles, California
Members: 17
Latest Activity: Jan 4

Discussion Forum

Birth Control to Control Seizures

Started by Sharon. Last reply by Sharon Dec 2, 2013. 2 Replies

This past Sunday I started taking Seasonique.  It's a three month pack of pill form of birth control.  There is a placebo pill, which I won't be taking since my dr. prescribe the medicine to level my…Continue

Tags: control, #birth, epilepsy, #catamenial, #seasonique

My Experience

Started by Sharon. Last reply by Sharon Oct 5, 2013. 9 Replies

When I was first diagnosed with epilepsy I had never heard of catamenial epilepsy.  It wasn't until within the last few years that I started to notice a correlation between my seizures and my period.…Continue

Tags: period, catamenial

Getting Diagnosed with Catamenial Epilepsy

Started by Jeanette Cefre. Last reply by Monica Bernstein Sep 2, 2013. 2 Replies

I first came across this type of epilepsy in doing a bit of research for my daughter.  My daughter was diagnosed with epilepsy at 5 years old and at that time it was petit mal.  We were hoping she…Continue

New To Catamenial Seizures and seizures period!!!

Started by Melissa Compton. Last reply by Monica Bernstein Aug 23, 2013. 6 Replies

Hi everyone!!!  I am Melissa and had my first seizure on wednesday of last week.  They did all the EKG, MRI, CT's and they were clear!!!  They did an EEG and there was seizure activity in my right…Continue

Comment Wall


You need to be a member of Catamenial Epilepsy to add comments!

Comment by Sharon on January 4, 2016 at 2:59am

Of course. It's always nice to watch video of doctors talking about things that effect seizures.

Comment by veronique brito on November 22, 2015 at 9:23am

Thank you for the videos. It is so nice to see doctors admitting this is an issue. I have asked for help and they did not know what to do so they ignored me. time for change! this means getting the hormones right will allow me to be free of seizures. yea. what a way to start the day. 

Comment by Sharon on January 29, 2014 at 4:27am

Comment by Sharon on September 26, 2013 at 12:11am

Thanks to everyone for joining the group.  I hope it is helpful to all of us.  Feel free to drop a line anytime : ).  Take care and stay strong

Comment by Sharon on September 7, 2013 at 9:59pm

Found a pretty cool article on Perimenstrual Symptoms and Syndromes.  http://www.jhasim.com/files/articlefiles/pdf/xasim_master_5_5_p228_...

Comment by Monica Bernstein on August 28, 2013 at 12:32pm

I don't know if catamenial epilepsy would affect getting pregnant. It may have nothing to do with it. Have you asked your neurologist and gynecologist? I have one child (21-year-old daughter) and I got pregnant by accident. I never dealt with trying to get pregnant.

Comment by Kelly on August 28, 2013 at 10:01am
My husband and i have been trying to get pregnant for the last 7 months. I've had catamenial epilepsy for almost 1 year. Has anybody with this type had trouble getting pregnant? I know it hasn't been too long, but i'd like to hear any thoughs if you have them! Thanks!
Comment by Monica Bernstein on August 13, 2013 at 11:58am


My doctor is Dr. Suzette LaRoche. I don't know your age, but I can tell you, first of all, that our menstrual cycle changes with age. Cramps, heaviness of bleeding, how long our periods last, etc. can change as we get older. There can be increases or decreases.  Secondly,  perimenopause and menopause can affect seizure patterns, as well. Seizures can increase, decrease, or not change due to perimenopause or menopause. I'm 45 and have been in the perimenopause stage for the past 6 years. I'm hoping my seizures will decrease after menopause. I take both Lamictal and Keppra XR, along with Tegretol XR.

Comment by Marie on August 12, 2013 at 9:04pm

Monica - I got to the Emory Clinic as well.  My current doctor Dr. Meador is leaving for Stanford sometime in the near future.  I see PA Teagarden for now.  Who is your doctor?  I've been going to the Emory Clinic for years but only new Pennell and Meador.

I don't think I was aware of the term catamenial until Pennell became my dr. either.

My catamenial epilepsy has become worse as I get older.  The past months have been trying.  I need to take extra meds, etc.  I'm currently on Lamictal 650/day.  My PA is suggested taking me off 50 mg of Lamtical and putting me on Keppra.  Anyone out there who takes both?

Comment by Sharon on August 11, 2013 at 8:42pm

It's nice to here you like your new doctor and that you stand your ground about your treatment.  That's right it is our bodies and our lives we should be the ones being able to choose what we want. 

Glad to hear that Keppra has been working for you.  I have about 3 or 4 complex seizures a month.  Not sure of the simple partials cause the aura has changed so many times I don't know what's what.  It was the easiest when it was the weird high feeling.  Now it's just a weird feeling but not weird enough to notice it that well (if that makes any sense. Lol).

Thanks.  Wishing you the best with everything.


Members (17)


Terms of Service Update 6/4/2012

We have updated our Terms of Service for eCommunities Groups.


© 2016   Created by EF Admin.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service