In this group We can have have an open discussion about the use of cannabis as an anticonvulsant
Latest Activity: Sep 24
Started by Dustin Revere. Last reply by Liz Coll Jun 20.
Has anyone else found cannabis as a treatment for epilepsy?Continue
Started by Amy Oct 29, 2013.
ACLU is suing in AZ, test case regards child with seizures, see…Continue
I have a 20 year old son with severe epilepsy. We have tried all the drugs, even did stem cell (Mexico) and still have weekly night time grand mal seizures. We live in Missouri so Cannabis is not legal. We have even tried Hemp oil with no luck. My son is so depressed because he cannot do nothing, (ie work, drive, date etc.). We are currently on the Ketogenic diet and it helps a little. We currently take depakote and keppra (name brand) but really does not work. Anyone ever tried cannabis off the street? Do you have to smoke it? Would love some thoughts on this.
That's fantastic, Liz.
I am still successfully controlling my nighttime seizures with cannabis edibles. I am convinced that cannabis is a great medicine for some people. It certainly has helped me enormously.
Well, Don, everyone's condition is so individual that first and foremost I think we need to "listen" to our bodies and our own reactions and act accordingly. Personally, I have found that eating cannabis helps me more than ingesting it any other way. If I eat some in the middle of the night, I can keep the nastiest of my seizures at bay.
Well Girls and Michael, I was one of the Hippies, and if fact I was at Woodstock! But that has nothing to do with this! I am a 65 year old Electrical Engineer who has worked for major corporations for the last 35 years, I am a Vietnam Veteran, and was a Fire Fighter / Paramedic back in the 1970's. My seizure disorder is the result of my exposure to good old Agent Orange in Vietnam, where I was actually directly sprayed with the crap twice coming out the gate of Fire Bases on the Cambodian Border by our helicopters dispensing it , and had that crap on my skin for 6 or 7 hours until I could get it showered off.
The first Grand Mall Seizure I had was in 1974 2 years after I got back from Vietnam, and was out of the Army. I only had a few over the last 35 years, none at all from 1990 to 2010, then Bam! I have had 30 since 2010! I have been using Medical Marijuana as a supplement to the prescription drugs my Neurologist is giving me to help the Seizures and orthopedic problems but my better half has associated the last few seizures with me using marijuana. Thinks it is triggering the seizures.
Nicole I would proudly wear any label you wish to call me America if you can control my Seizures, I bet if we hooked up the electrical cord from the wall of your home to the brain of the normal and give them a taste of the haywire brain attack on our bodies, they would gladly jump on our team to control that ?
I am very impressed by the posting below stating that cannabis oil cured a boy's seizures: http://www.csindy.com/coloradosprings/10-year-old-is-seizure-free-a.... Very impressive results. It seems so clear that cannabis is a healing herb that laws against it just appear arbitrary, archaic and ridiculous at this point.
Sonja I live in Plattsburgh NY we use to go to Albany Med till the dr told me that my son wasn't going to live past 10 years of age and we didn't even have a dx yet. My son also has generalized epilepsy. We go to Boston Children's hospital, very happy. My son has 4 different types of seizures including having night seizures. He is on 4 AED's and a restrictive diet which helped him out ALOT! I sent you a friend quest but I would love to meet up sometime. You aren't that far away and besides anything is closer than BOSTON.
i also live in upstate ny,my 9 yr old was diagnosed w generalized epilepsy 3 yrs ago after a 26 min granmal seizure in school...she is now having uncontrolled night seizures and on keppra,shes being admitted to epilepsy unit again next week....i would love to hear more about medicinal marijuana for her...unfortunately ny state is not passing it for epilepsy
Just scanning the news before bedtime last night and I now have hope restored. Medical Marijuana is going to be legalized in NYS. It's limited, but maybe it'll cover epilepsy.
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