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Beyond Medication

Many people with epilepsy can have their seizures controlled with medication. But, if medication doesn't work there are other options.

Website: http://www.epilepsyfoundation.org/beyond
Members: 20
Latest Activity: 1 day ago

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Southie ~ Sharon

How do you refocus? 3 Replies

In this question; I am asking how does one refocus oneself?To reduce stress, regather composure, finding other alternatives(via working with their Physicians), and so forth.

Started by Southie ~ Sharon. Last reply by Kari Lynne Brauer Mar 23.

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Kari Lynne Brauer Comment by Kari Lynne Brauer 1 day ago
Have you asked your dr. about taking Tylenol PM. or Benedryl ? I take them an hour before I go to bed, now I sleep like baby.
Judy Pfeifer Comment by Judy Pfeifer on July 27, 2010 at 1:26pm
Hey all, I'm having TERRIBLE time getting to sleep and staying asleep. I'm on lamotrigine and zonisamide , but my Neuro said the zonisamide med was suppose to make me sleepy so take it at night. So of course I do and follow close to my doctors orders. But the not sleeping well and not very long start getting to me and I'm having up to 5 or 6 auras a day...I had 7 seizures almost two weeks ago, but I wasn't on the zonisamide then. So it's all the lamotrigine. I'm not a tea drinker. I do either listen to music or an audiobook to fall asleep which I was doing even before I had sleeping problems. I used to sleep very well. I'm only drinking maybe 1 cup of coffee a day, and maybe a little cup of soda. So caffeine can not be the problem, I used to drink like 4 cups of coffee a day and still sleep like a baby. I'm afraid if I keep going the way I am then I going to end up having more seizures because I'm so tired. Though I have no clue what my triggers are.
Carl B Ross Comment by Carl B Ross on June 24, 2010 at 3:35am
Bethany,

I have a few hypnosis downloads I can share, otherwise they can be rather expensive. My father is also a medical Hypnotherapist and has done a sleep hypnosis I find very effective, I was skeptical at first because it's my own father and who listens to their father?? there are literally thousands of hynosis downloads out there, the ones My father uses are from a site out of england where there is a more clinical approach and more widespread use. With your permission I'll share this with him and he can better inform you of what he can do for you. I'm sure at the very least He'll have no problems with me sharing the relaxation hypnosis he wrote. He's even done them over skype.


peace, carl
Kari Lynne Brauer Comment by Kari Lynne Brauer on June 22, 2010 at 9:39am
Bethany,
I take Keppra also. I also have a hard time sleeping as well. I take Tylenol pm a hour before bedtime and have cup of herbal mint tea, then do something quiet for that time. this helps me to relax and sleep more peacefully and I, like you do not wake up anymore with a racing heart or in a sweat from having seizure while I am sleeping. The price is cheaper and it does not bother the Keppra. I am waking up now more energized and ready to take on the day! Hope this helps you Bethany.
Blessings, Kari
Bethany Hahlbeck Comment by Bethany Hahlbeck on June 21, 2010 at 11:58pm
Hi Carl, i just joined the group. I have a horid time sleeping. My Dr. wants me to stay up til midnight and get up early to reprogram my brain but its not working. She also has me on zoloft which i take before bed. I dont know if its Keppra or just my brain activity.when i do doze off i wake up in a total panic, drenched in sweat, heart racing and disoriented,those things frighten me because i often have those same feelings before a seizure. I am not in control and your right, its tough to handle. Im interested in hypnosis. Lack of sleep is a main trigger for me.
Carl B Ross Comment by Carl B Ross on June 21, 2010 at 10:43pm
I've been struggling with breakthrough symptoms, and panicky auras over the past few weeks and having great difficulty getting to sleep even with trazadone. something I'm finding quite helpful is hypnosis. Psychologically it takes a lot from you when aren't in control of your symptoms. the hypnosis really helps take the edge off and help me get to sleep. there are numerous recordings from self esteem, to sleep
Kari Lynne Brauer Comment by Kari Lynne Brauer on June 17, 2010 at 10:21am
How is everyone here doing? I hope summer is going well for you all.
Kari
Kari Lynne Brauer Comment by Kari Lynne Brauer on March 18, 2010 at 11:50am
Let's see if we can start a discussion. Hmmm, how about; What kinds of activities do you do throughout your day to help you relax?
I enjoy the outdoors. I walk, bike. In the evenings I like to grab a cup of mint tea and read a book. Right now I am reading a book called "Fire Starter"
Kari
James Edgar Barrett Comment by James Edgar Barrett on March 9, 2010 at 4:25pm
Happy to be aboard. Looking for some discussions.

James Edgar Barrett
 

Members (20)

Southie ~ Sharon James Edgar Barrett Kari Lynne Brauer EF Admin Ken Denys EElston Lisa Crippen BJ Bailey Ruth R cistus breeze jeffrey greenwald Susan  Cassady Towana Hamilton Janette Ruth Renken Karl A Yunker Carl B Ross Bethany Hahlbeck Rachael Keip m kirk Judy Pfeifer
 
 
 

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