Baby Talk

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Comment by Charisse Garcia on May 6, 2013 at 3:03pm

My daughter was diagnosed with pyridoxal phosphate dependent epilepsy it is very rare if you know more about this please let me know what more I can do to help her.

Thank you!

Comment by zara messenger on January 11, 2013 at 2:21am

what r your experiences with your childrens speech development after beginning to have seizures as babies?

Comment by Shayna Roodman on November 15, 2012 at 2:05pm

Hi all.  My son is almost 11mo.  He had his first seizure around 9mo, and I called my mom (she's a nurse) and she'd said not to worry about it.  Stupid me :-\ A month later he had two grand mall seizures 10 minutes apart.  I called 911.  After spending 3 days in the hospital, and all his tests coming back normal, I started doing more research about seizures and found out the spasms he had been having since 5mo weren't just "silly baby", but actually seizures as well.  At the follow up with the neurologist I told him about the spasms, and he diagnosed "a seizure disorder" and put him on Keppra.  He hasn't had another grand mall, but the spasms continued though fewer and farther between.  Then on Monday they started again.  He sees his neurologist today, so we'll see what he says....

Comment by Ana Bailey on July 13, 2012 at 6:31pm

My son is 5 weeks only now and had his first seizure at 9 days of life. He has now been diagnosed with Pyridoxal 5-Phosphate Dependent Epilepsy. This form of epilepsy is very underdiagnosed so if you have an infant with seizures without a known cause, please read my post- http://epilepsyfoundation.ning.com/group/pyridoxal-5-phosphate-depe....

Comment by Samantha Mullins on January 23, 2011 at 10:01pm

My daughter Gariann has started having seizures at 5 months old, she will be one year in March. We hope is only childhood epilepsy, but have prepared for the worse

Comment by avis(momdukes) on December 1, 2010 at 3:13pm

my grandson elijah is 2yrs of age he has been having seizures since he was 6months he now the seizures has gotten stronger please pray for him he is such a little fighter i call him my angel.

Comment by Karla Barnett on July 30, 2009 at 11:48pm

Hi. My child's neurologist feels that he has been having seizures during the night. After reading all of the info, I know that this is a high probability. He is taking Keppra. How scary!