Epilepsy Foundation

I have heard such promising outcomes for the kids who were fortunate to have
IVIG who have a devastating seizure disorder. How can I get this treatment as an
option for my child?

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I had heard a lot of promising outcomes as well, but my son has been taking IVIG therapy since May and although his seizures are fewer, and shorter, I'm not sure if it is due to the IVIG or the Banzel? I will be interested to hear what Dr. Pellock has to say about this. We are getting it at St Clares Hospital in Denville, New Jersey.
can you tell me what ivig therepy is?
natalie

Phyllis said:
I had heard a lot of promising outcomes as well, but my son has been taking IVIG therapy since May and although his seizures are fewer, and shorter, I'm not sure if it is due to the IVIG or the Banzel? I will be interested to hear what Dr. Pellock has to say about this. We are getting it at St Clares Hospital in Denville, New Jersey.
I've heard some really amazing stories about IVIG. It's one of the lesser-known treatments available...

Natalie, IVIG stands for intravenous immunoglobin therapy and its a plasma protein replacement therapy. It contains the IgG antibody which comes from the plasma of blood donors.
what makes a child qualify for this therapy? is it one treatment or many? thanks, natalie

LGS Foundation said:
I've heard some really amazing stories about IVIG. It's one of the lesser-known treatments available...

Natalie, IVIG stands for intravenous immunoglobin therapy and its a plasma protein replacement therapy. It contains the IgG antibody which comes from the plasma of blood donors.
it is multiple treatments. i am also very interested to hear what dr. pellock has to say.

Natalie Welch Gilmore said:
what makes a child qualify for this therapy? is it one treatment or many? thanks, natalie

LGS Foundation said:
I've heard some really amazing stories about IVIG. It's one of the lesser-known treatments available...

Natalie, IVIG stands for intravenous immunoglobin therapy and its a plasma protein replacement therapy. It contains the IgG antibody which comes from the plasma of blood donors.
My son was in the Pediatric unit of the hospital for a video EEG. It was suppose to take 3 days, but he was hooked up for a week. He had over 1000 seizure episodes (which may or may not be a lot for those in this group). It just so happened that he was in a cluster that wouldn't stop, which happens every year or so. Anyhow, the Neurologist suggested IVIG therapy because the medications they were giving him didn't seem to stop the seizures. It was frustrating for all of us. He wasn't in "status" but had a seizure on average every 3-6 minutes. They lasted anywhere from 20 seconds to 3 minutes each.
Mikey has had seizures since he was 14 months, and used to have over 6 a day. He use to have drops, tonic clonics, myoclonics etc... He now thankfully is only having short (25 sec) complex partials and is now down to one or two a day and sometimes he will go up to a week seizure free. The IVIG was started in May and we recently took him off Lamictal which didn't help and started him on Banzel, which has helped a lot.

Anyhow, I'm rambling, the doctor suggested IVIG because he was a candidate with little to no control at the time and they had much success with other patients. The jury is still out about it's effectiveness with Mikey.

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