Epilepsy Foundation

Hi everyone. 

Right now I'm trying to get my social security benefits because i cannot drive and I live in a small town where there is not much going on. no work, etc. Its not even a town. So I was wondering if anyone had any tricks to getting social security benefits. Or getting around to work. Anything can help.

Thank you 

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I get to work because I have a daughter who drives me there, but that's not exactly a short-term solution.  The county here also has a transit service that for much less than the cost of a cab will pick you up and deliver you where you're going.  I have enough relatives and friends that I've never tried using it, though.  You might investigate whether there's anything similar near you.

Tim

That what tend to hold me back SSI and long distance driving.  

Right now I'm working with vocational rehabilitation and also trying to get my social security. I have been informed that I will need to take an IQ test. I just got an MRI and saw a psychologist and gave social security the information on how to get those records. I just got in touch with a lawyer and I don't know what they will say about my epilepsy if it can get me my social security. I know it just sucks not being able to get any income and having to get help from other people to pay things for me or drive me around. I live about 5 miles away from the bus that can take me to a bigger city but my problem there is that the bus would not get me there on time for like working in the morning and coming home after shift is over or coming in at like 2 and working till 9-10pm and not having a ride home.  

I don't know your full story, but if you are able to work, and the main thing that is preventing you is transportation, then have you considered moving to, or near, a city with good public transportation?

I was diagnosed at age 19, and lived in New Jersey, where public trans was awful. So, a few later, (22 yrs old) I moved to New York City. Great public transportation! (But no cows.....)

My history is that I have had epilepsy sense I was 2 months old. I'm now 20 years old. And i live in a small town where there is not alot of stuff going on. I have tried my hardest with finding any type of income. Sense I could not get any jobs where I live, I went to social security and started may-2-2013. I live with my grand parents because I have no income. I'm able to work but the problem is that I cannot get to work on time with transits. they don't start until 7:30 and most morning jobs want me there by 6am or 7am. I would be late. Or come like at noon and start at 2 but then if I was to work a whole shift I would not have a ride home because I would work like till 7pm or later. Transits are not running after 5:30 here in oregon. I tried asking jobs if they could like have me come in at 9am and I would work until 4pm due to my epilepsy. they said they would need a letter from the social security office saying why I cannot work normal shift but social security would not do that because they think I'm not disabled. so for me to get any where, i would need to get my social security before they will give me letters saying that stuff.  

Now about me moving, I don't know how if I cannot afford to pay for the house. If i'm zero income, how can I buy a place or start the rent. I'm working with vocational rehab to see if they can get my a job where I can work with the transit system.   



Betty Anne said:

I don't know your full story, but if you are able to work, and the main thing that is preventing you is transportation, then have you considered moving to, or near, a city with good public transportation?

I was diagnosed at age 19, and lived in New Jersey, where public trans was awful. So, a few later, (22 yrs old) I moved to New York City. Great public transportation! (But no cows.....)
Hi, I am no expert on this but I do know that SSI or SSDI will find any reason to deny your benefits. You will need to prove with medical records that you cannot work due to your medical diagnosis. Transportation barriers will be ignored as a valid reason even if it is very real problem. Medication side effects, the unpredictability of seizures, safety, etc might be a better focus. Once you are turned down, see an attorney. It might be the only way. Good luck!

Years ago I was removed from SSDI benefits because I earned too much from a part time job.  I argued the rules were so confusing I didn't understand I could earn too much doing my part time work and then be excluded from benefits.  I still had seizures and still couldn't drive....

While I wrestled with the SSA I wrote a letter to my Congressman for help.  I think he had some influence in getting me back on SSA.  So don't forget before you contact an attorney write your Congressman if you think you need extra support; it may not help but it couldn't hurt.


Michael Waller said:

Hi, I am no expert on this but I do know that SSI or SSDI will find any reason to deny your benefits. You will need to prove with medical records that you cannot work due to your medical diagnosis. Transportation barriers will be ignored as a valid reason even if it is very real problem. Medication side effects, the unpredictability of seizures, safety, etc might be a better focus. Once you are turned down, see an attorney. It might be the only way. Good luck!

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