Epilepsy Foundation

My daughter had her first seizure almost one year ago, 2 days prior to her 14th birthday.  We were never told to chart her period in relation to her seizures, but eventually noticed a pattern ourselves.  Her seizures are still not under control. Her dosage of Keppra was just increased yesterday, so we'll see.  Her neurologist said that with her seizures happening around day 6-10 of her cycle, that it isn't likely that there is an association.  He said that most seizures that are related to the menstrual cycle happen in the first couple of days.  Does anyone have any knowledg/experience in this area?

Views: 3091

Reply to This

Replies to This Discussion

This is a condition called "catamenial epilepsy," and describes a tendency for increased seizures related to the menstrual cycle. In some women, seizures occur most frequently just before menstruation, during the first few days of menstruation and at mid-cycle, during ovulation. The causes of catamenial epilepsy are not understood very well. The balance between the two female sex hormones, estrogen and progesterone, may be disturbed, or you may not be producing enough progesterone during the second half of your menstrual cycle. It is also possible that the amount of antiepileptic drug (AED) circulating in your bloodstream may decrease before menstruation.

MThornton
Epilepsy Foundation
The Epilepsy Resource Center
I always had more seizs around "that time of the month"( I also had horrible cramps). But it took docs a long time to figure out I had scar tissue on the brain. It took a lot longer to find a doc willing to do the surgery (RTL when I was 23). When I was 18, I started taking the depo provera shots. Even though they didnt completly stop the seizs, they helped control the spikes in them around "that time of the month". . I am 36 now. They couldnt remove all scar tissue in the surgery (also had a stroke during it but Im lucky. I have recovered most of the way from it) but my seizs were reduced from cps to sps. I am still on the depo and prob will be for a LONG time.I also have the vns (but for me it didnt do any good. I am planning to have it taken out. The leads are rubbing against nerves in my neck causing pain). But for some people the vns has helped.
So, would you say that if the seizures tend to be around day 5 to 10 of her cycle, that this would also be labeled as catamenial?

I&R Group said:
This is a condition called "catamenial epilepsy," and describes a tendency for increased seizures related to the menstrual cycle. In some women, seizures occur most frequently just before menstruation, during the first few days of menstruation and at mid-cycle, during ovulation. The causes of catamenial epilepsy are not understood very well. The balance between the two female sex hormones, estrogen and progesterone, may be disturbed, or you may not be producing enough progesterone during the second half of your menstrual cycle. It is also possible that the amount of antiepileptic drug (AED) circulating in your bloodstream may decrease before menstruation.

MThornton
Epilepsy Foundation
The Epilepsy Resource Center
Seizures occcur most frequently just before menstruation, during the first few days of menstruation and at mid-cycle, during ovulation.

MThornton
Epilepsy Foundation
The Epilepsy Resource Center
My dd's seizures occur 5 days before her period and I am confident they are related to her cycle. I would drop this question over on the Living w/Epilepsy forum on this site so you can get more input. I suspect your dr. is wrong! Definitely start charting! Good luck!
I've only read about it being a certain type of seizure and is triggered by the change in hormones. I think there's a certain type of med. I would ask the Dr. It's apparantly common.

Hi Nancy,

I am not a Dr.


On day 6-10 there is a very small (normally) increase in estrogen production which is not normally associated with an
increase in seizures, the larger increase in estrogen starts on day 10.

It could be possible that your daughter has a higher than normal increase in estrogen earlier than day 10, this would put her right in the "C2" Catamemial Seizure Zone from the link in the next paragraph.

Here is a link with chart showing "Normal" hormone patterns and the 3 normal catamenial seizure zones C1,C2 and C3.  Catamenial

Many people fall outside this "normal" chart, not everyone has a 28 day cycle or the same baseline hormonal profile.

Depending on the individual, a person can have hormone related seizures anytime during their cycle.

 

Upon further reading.
 
Days 6-10 would be in the Follicular Phase, the follicular phase is accompanied by an estrogen surge, the estrogen surge has already begun by day 7 and continues for about 6 more days.
 
Following this, it is possible that a seizure increase could occur due to estrogen increasing during days 6-10 of a woman's cycle.
http://professionals.epilepsy.com/page/catamenial_eval.html

Nancy,

My daughter began having seizures last May (2011).  For several months leading up to the seizure she would have 'episodes' around the beginning of her cycle. She would get pale, feel clammy, nauseated, dizzy, etc. Her first seizure occurred on the day after her cycle started, her second two days after it stopped and her third about two weeks later.  Her seizures are controlled while on Keppra and Vimpat, but we still have 'episodes' around the beginning of her cycle.  Yesterday (day after she started this month) she had her first aura since Sept.  Her neurologist and pediatrician think I'm crazy every time I mention her cycle and the 'episodes' and seizures.  Have you gotten any answers?

Lori

 My Daughter had the same problem she was on lamictal and around age 13 she started having seizures about every 27 to 30 days. I know this because I started and maintained a seizure log. She had several medications added to her lamictal but knowthing worked. Finally her neurologist added a drug called Diamox 250mg 2 times a day with her lamictal which started controlling her seizures right away. She has been seizure free thank god for almost three years. Diamox has some side effects and like all meds they are differnt for everyone in my daughter she lost some weight. You never know maybe this can help you, discuss it with your neurologist.

Hi,  My daughter started having seizures at 19 and she is now 20.  They are complex partial and still are not controlled.  she was on keppra for about a year and still no control.  Added topamax and others but didn't help.  I have not heard of Diamox.  How is your daughter doing?  I will ask Dr. about Diamox.  Thanks.



Charles Hofmann said:

 My Daughter had the same problem she was on lamictal and around age 13 she started having seizures about every 27 to 30 days. I know this because I started and maintained a seizure log. She had several medications added to her lamictal but knowthing worked. Finally her neurologist added a drug called Diamox 250mg 2 times a day with her lamictal which started controlling her seizures right away. She has been seizure free thank god for almost three years. Diamox has some side effects and like all meds they are differnt for everyone in my daughter she lost some weight. You never know maybe this can help you, discuss it with your neurologist.

Hi Nancy,

  For yrs.  I would haves sz. 3 days before my menstrual cycle and then again after it was over. All of this was do to hormones changing as others have mentioned.  My neuro put me on Diamox 5 days before my cycle yrs ago and this helped reduce the sz. because it was getting rid of the extra fluids in my body.  I was also told to write down on a calendar when I started and stopped my cycle and to write down each time I had a sz. on the calendar writing down the time and the type of sz. I had. This showed my Dr. a pattern in my sz. each month. Later on I started to eat almonds or low salt peanuts because they have progesterone oil in them and I was amazed how eating nuts reduced my sz.  Iwish you and your daughter only the best and May God Bless You Both!

                  Sue  

Reply to Discussion

RSS

Terms of Service Update 6/4/2012

We have updated our Terms of Service for eCommunities Groups.

Events

September 2014
SMTWTFS
123456
78910111213
14151617181920
21222324252627
282930
       

© 2014   Created by EF Admin.

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service