We are scheduled to start our Keto road at the end of April with a 3day (or 4) admittance to UCLA Medical Center here in Los Angeles. We are absolutely overwhelmed but trust our Ped/Neuro in that she thinks that our lil guy (3 y.o) is a very good candidate. I am scared to death but look at how he is on all 3 of his meds and would sing from the mountaintops is we could reduce those horrible meds. We were basically told that if we don't want to try the diet that we are in for a medicine rollercoaster as a lot of patients have to change up their meds when their body gets "used to" them and I am NOT ON BOARD for that! I hope to connect with more people doing Keto here. Esp. when it comes to how to get a 3 yo to eat it all! =) ha! I am looking forward to working with out nutritionist assigned to our case however as our first meeting went failry well. We have a parent "training" in March which I believe is like 3 hours and them admittance in April. I'll try to keep following you to see where you guys end up! =) Much luck & prayers to you!
Please check out Matty's story at the following URL: http://epilepsyfoundation.ning.com/profile/AMYRUMENAPP
The diet was such a blessing for us even though it is hard for everyone involved. But, I've been doing it now for a year and a half...and I would not change a thing.
Please feel free to ask me any questions...I'd be happy to share any information with you.
Best of luck!