Epilepsy Foundation

Hello,

I am new to this forum and an looking for advice about my husbands situation. The past few years my husband has experienced what we though were small seizures where he would get an aura and bad taste in his mouth or a weird thought where he could not talk or form a thought for about a minute. A little over a month ago he began this aura at work at work and it turned into a grand mal seizure where he lost consciousnesses and had convulsions. He does not remember anything from this seizure but waking in the Er. A week ago he was having the auras all weekend and on monday he had another grand mal at home. I found him laying in the floor babling,  in and out of conscious, slowly coming out of the seizure. He did not remember most of the weekend and no memory of the seizure. I called the paramedics but he refused to go with them after coming "to". I did take him into the er where they ran blood work, ct scan and xrays. Everything came back ok but his white cells were a little elevated which the er doctor says was from the seizure. The put him on keppra 500mg once a day and he has an appointment with a neurologist in a few weeks. This week has gone by ok but he says he just feels a little off. No seizure activity but he says he feels somewhat slow at times. A question I have is if this happens again at home do I call the paramedics? One medic that was here told my husband if he didnt go with them that he may not come out of his next seizure...this scared me to death. I mentioned this to the er doc and she said that was not going to happen and she did not understand why they would tell me this. Right now I am in constant fear that he will have another big seizure and I wont call the medics and he wont come out of it. When I witnessed the grand mal seizure he did not fully come out of it for 10 or 15 min, to the point where he was awake and talking somewhat normal. Any advice or input would be greatly appreciated.

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Did they give you diastat? A seizure is an emergency only if the person injured themselves, has trouble breathing or if the seizure lasts longer than 5 minutes. 
For a seizure lasting longer than 5 minutes you can administer an emergency medication called diastat. Every person with seizures should have this in case of an emergency. 

They did not give me anything, other then the keppra script. When you say a seizure should no last longer then 5 min do you mean from the onset until the person comes to and can comprehend things? I know my husband took a good 30-45 min before he was fully aware of what was going on.

There is a post ictal period after a seizure that normally ranges from 30 minutes to an hour but can take even longer to re gain equilibrium and processing speed. 
When they say 5 minutes that refers to the actual seizure itself. 

joyce Blair said:

They did not give me anything, other then the keppra script. When you say a seizure should no last longer then 5 min do you mean from the onset until the person comes to and can comprehend things? I know my husband took a good 30-45 min before he was fully aware of what was going on.

Also 3 seizures within one hour without gaining consciousness between them is also considered an emergency. 

Jill Osborn said:
There is a post ictal period after a seizure that normally ranges from 30 minutes to an hour but can take even longer to re gain equilibrium and processing speed.  When they say 5 minutes that refers to the actual seizure itself. 

joyce Blair said:

They did not give me anything, other then the keppra script. When you say a seizure should no last longer then 5 min do you mean from the onset until the person comes to and can comprehend things? I know my husband took a good 30-45 min before he was fully aware of what was going on.

What is diastat and is this something I should ask the neurologist about when we see him on the 8th?

Diastat is a pre dosed suppository of Valium that is used to stop a prolonged seizure. 
The neuro should absolutely,100% cover this with you and send you with a prescription for it.  

joyce Blair said:

What is diastat and is this something I should ask the neurologist about when we see him on the 8th?

Thank you so much for all the information, you have been very helpful.

Joyce,

This is a very scary situation you are in, especially since you are brand new to this. The hardest,but best thing you can do right now, is get control of your fear. You have to face your fear, for your husbands' sake. I can tell you love your husband very much, but you can not be of any help to your husband when you are constantly fretting, worrying, stressing.... Showing these emotions in front of your husband can cause him to trigger another seizure. Stress is the number one cause of triggering a seizure. It can be physical or emotional stress. So the the stress you show, the less chance of triggering a seizure. If you need to worry, get with a girlfriend or another family member and spill yourself out on them, then visit calmly with your husband. 

  Make a plan that works for the both of you. First you need a support team who is willing to help all the way. Make sure this plan is not only your plan, but your husbands' as well. You are a team, work together!

  Start by learning together. Communication is VERY important!!

Listen to the doctor, but most of all listen to your husband, it is he who is having the seizures! He knows how he is feeling. It is okay to talk to a couple neurologist. Find one that is the right fit for your husband and you. Make your home a relaxing environment.   If your husband has another seizure,talk to him calmly and collectively as possible. Let him know you are right there and everything is going to be alright. You do not need to call the ER unless he has been in a seizure for over 5 minutes. Keep stroking his hair and talking about what ever might come to mind. Do not move him, make sure there is no objects in his mouth, don't use your fingers you would take a chance of getting them bit. I hope this helps you get started Joyce.

  God Bless you, Kari

Sorry to hear of the extremely hard time you and your hubby are facing. Definitely a life changing situation . Hoping this turns around for you both and things get better soon.

As what was previously mentioned about diastat(brand name) diazepam(generic) is a Benzodiazepine. There is a long list of different benzos that you can look at on wikitionary or any other place on the web. You definitely have to have some in your house at all times just to be safe.

Keep the faith

Chris

I had learned on here that people didn't need to go into the ER if a paramedic comes to help  if you have a GM.  I was also told at that time (years ago) that if you are diabetic and have a GM, that you should be brought in the to ER.   Anyway, I had a GM and I came back around at about the same time the paramedics got to my home.(15 minutes)  They began to leave when I remember telling my husband that on this sight that I heard I should be brought in to the ER.  It was the best thing ever to hear on here!  I was conscious and either I or my husband let the paramedics know that I was diabetic.  They decided to check my bloodsugar.  It was crazy that I was conscious because they found my bloodsugar to be "0"!  I am usually unconscious if my bloodsugar goes below 35.  This GM seizure I had was all caused by my extremely low bloodsugar.  I don't know what would of happened if they just left after my seizure stopped.  I can only guess that it would of started all over again or just gone unconscious.  This is rare for this to happen to me.  I am on an insulin pump and a couple hours before going to bed, I noticed that the insulin reservoir was not screwed all the way in so I screwed it all in.  Mistake!  When I screwed the syringe in, it caused it to inject a large dose of insulin.  duhhhhhhh!  I was the dumb one!  anyway, I, being diabetic, know to always go into the emergency room if a GM hits, but not everyone according to the paramedics.  (this could be different in different areas, but this is what I was told on here and what these paramedics almost did.

The problem having seizures and then seeing paramedics is because your brain comes back one side at a time.  One side allows you to see and hear what's going on and that comes back first.  But the other side that controls your speech could take another 5-10 minutes.  Then it may take more time to feel like you're back to normal.  It's a very frustarting time because you know you're OK but you can't communicate.

 

Don't get me wrong.  There will be times the seizure lasts so long you need medical help but too often you end up in the ER when you could just take it easy and feel fine in about 30 minutes.

 

Ed

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