Epilepsy Foundation

  Hi Guys,

  I wanted to reply to a post but I'm brand new & I lost it so Please forgive me for starting a new one.

  Heat & Hormones are my major problems!  I have complex/partial Epilepsy but when I get too over-heated or hormones are involved I have "Drop Attacks".    For me it even involves doing my dishes in too warm of water so it's not the running over the head thing!

  I even had the VNS put in 1/5/10 but it can't stop the hormonal seizures for some reason?  I'm even photosensitive & can't get near anything when my hormones kick in high gear.

  My M-I-L isn't too nice 'cause she thinks I'm lazy but I just can't go out in the Summer & be all active in 90 degree weather & going through menopause too.   People don't understand.  

  Anyway, just wanted to let you know it's not just the shower over the face.

  Hugs,

  Rosie in Pa.

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I've never noticed dish water bothering me, but blow drying my hair, esp. in the summer, bothers me. Hot showers cause my seizures too. So, I just cut my hair (donated to Pantene). I'm hoping this helps with the summer coming. I feel bad because I cannot get out in the summer and do much of anything, unless I do it very early or very late. Thank goodness my M-I-L and entire family is very understanding. I am also very photosensitive, but sunglasses help with this for the most part. Good luck to you....

Heat is one of the many trigers for seizures because it for some reason causes sweat and more peenwill triger seizures. I always have to be very carefull in the summer to stay in the shade, i'll have a cold bottle water, gatorade and orange juice to energize me back.  Even my car has dark tinted windows because the sun heat will start making me sick.  I do the best to stay out of heat but sometimes I can't so I do the best to have some else with me.

 

I really believe that it all depends on the individual's persona to the climate; the way they have adapted to such thereof. For I am a tropical person and no way I can tolerate cold weather for cold is a seizure trigger for me; just vice versa to those from up North having to come down here and suddenly they experience seizures because they are not adapted to the climate. This is my own humble opinion here more than anything else.

 

For if one truly stops and think about it, nearly majority of the population of USA and the world itself is over the Tropic of Cancer and Tropic of Capricorn line (the imaginary line that runs across the earth where the sun hits North & South on the axis); far more of such resides further north of that line than anywhere else if one were to look at the population map - for example, if one looked at USA one would see that the majority of the population of USA is in NYC, DC, in that broad Metro area zone by the millions than anywhere else; this is something I had learned in Junior High, I think "Social Studies" (?) - I still see it viewed as it today even in Census Reports.


True, we have folks here and there, but if you inquire where they originated from - OH, I came from Pittsburg, PA, Bronx, NY, Syracuse, NY, Parsippany, NJ, et al - but balance for balance; finding a genuine native is difficult, you might find some that are 2nd or 3rd generation; however, they are just beginning to adapt to the climate.

 

Due to my area, being heavy in Military of every force; one of the major common complaint of those who have been transferred here and there and there (including overseas); is the fact, they have to adjust to the climate, not so much to the "Society" or anything else. Whether it be from GA to HI then to AZ then to MA and who knows where onwards to Germany and the next thing they know they're in Alaska before you could bat an eye they're in AL, then NC, and so forth... I have to comment, that has got to drive one batty, whether one has Epilepsy or not. Facing arid to humidity to frigid to "your royal mugginess" .. where the hair of your skin sticks to the skin ... get the idea?

 

I did run a poll on another web design site, and while some it had no impact, they had seizures all year round, but it seems that more people are effects (if I can remember correctly) by the heat than by the cold; but of course, remember - much of the population is up there in the cold, so therefore, they are adapted to the cold climate.

 

Am I making any sense or just rambling here?

The Epilepsy Resource Center would like to share the following information:

9266) 1984 - Epilepsy and weather: a significant correlation between the onset of epileptic seizures and specific atmospherics: a pilot study
International Journal of Biometeorology 1984, vol 28, no 4, pp 333-340
Ruhenstroth-Bauer G; Baumer H; Kugler J
The possibility of connections between weather and the onset of epileptic seizures has long been suggested (see, for example, the Hammurabi Codex 1600 BC). Work in the 20th Century points to a probability that the onset of both local and generalised epilepsy is significantly influenced by an interaction between genetic and extrinsic factors. In an attempt to clarify the situation a detailed study of the history of 315 attacks from 1 Jan. to 31 July 1981 suffered by a small number of patients in Munich has been undertaken. Although linkages between "classical" meteorological parameters and the onset of seizures are very weak, links with more generalised indexes (e.g. passage of fronts and disturbances) are more promising. However, the correlation between onsets and "atmospherics" of 28 KHz (positive) and 10 KHz (negative) impulses, are significant and call for urgent study.

(18868) 1998 - Subjective perception of seizure precipitants: results of a questionnaire study
Seizure 1998, Vol. 7, pp 391-395
Spatt J; Langbauer G; Mamoli B
We evaluated self-perception of seizure precipitants in 149 adult subjects with epilepsy: 71% of the subjects reported at least one factor that, according to the perception, increased the risk of suffering from a seizure. The subjects most often reported psychological stress, change of weather and sleep deprivation. Among the disease-related factors, seizure frequency and the state of consciousness at the onset of the seizures influenced perception of precipitants. Furthermore the perception of some precipitants is the result of a combination of physiolgically based temporal and causal correlations and of beliefs of the patient about such relationships. Hence reports of seizure precipitants are determined by somatic as well as psychological factors. Efforts to clarify the relationship between possible precipitants and the occurrence of seizures should be intensified. In addition the great importance of seizure precipitants in lay theories of epilepsies should be considered in counselling patients with epilepsies.

(31777) 2007 - Atmospheric pressure and seizure frequency in the epilepsy unit: preliminary observations.
Epilepsia. 2007 ;48(9):1764-7.
Doherty MJ, Youn C, Gwinn RP, et al
Objective: To demonstrate that seizure frequency in patients undergoing video EEG telemetry does not correlate with atmospheric pressure (AP) changes. Method: Historical automated AP data from weather stations in the Seattle Metropolitan area were correlated to seizure frequency and type in consecutive patients undergoing video EEG telemetry at our institution from April 2005-April 2006. Daily maximum, minimum and range of atmospheric pressures were correlated to daily number of events (seizures, pseudoseizures, unknown) per patient. Alternatively, whether or not events occurred during a change of greater or less than 5.5 mBar per day were used to evaluate odds ratios of events occurring. Results: Of 191 patients, 96 were diagnosed with epilepsy, 60 with pseudoseizures, and 40 had different diagnoses. A total of 159 seizures, 59 pseudoseizures, and 40 unknown events occurred. No correlation between daily mean, maximum or minimum pressure change with seizure or other event frequency was seen. With increased daily AP range an increase in daily seizure per known seizure patient occurred (P = 0.03). Patients with known epilepsy showed an OR of a seizure occurring of 2.80 (95% CI 1.22-6.42 P = 0.02) if pressure changed more than 5.5 mBar that day. Conclusions: Surprisingly, in patients with known epilepsy, increased seizure frequency occurred with changes in barometric pressure, particularly over 5.5 mBar range per day. Speculative mechanisms of AP change on seizure susceptibility are discussed.

 

Cordially,

Gigi Jones

Information Specialist

EF's Epilepsy Resource Center

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Epilepsy and Seizure Response Training for Law Enforcement: http://www.epilepsyfoundation.org/firstresponders/index.cfm

 

Rosie in PA, I left my heat related problems back in the humidity of Erie, PA. My Epilepsy began when I lived here in Las Vegas, NV. I moved back to Erie, PA for family reasons and my head EXPLODED! I had uncontrolled seizures no matter what meds I was on. Now that I'm back in the dry climate of Las Vegas, NV, the aura's have stopped, the headaches don't happen as frequent or as bad and I my seizures are far apart if I do have them. I'm having Temporal Lobe Surgery at The Spine Brian Institute here in Vegas in a few months. The drier climate has already made a difference in my head and surgery is, as diagnosed by the surgeon, supposed to control my seizures with a minimum of medication. When they say, "It's a dry heat." out here in the desert, it means it's not humid and moisture in the air is almost non-existent. It makes a huge difference to someone like myself who has migraine headaches and seizures. As someone who lives in Erie, PA, I'm sure you can tell me all about 80% humidity summers in Erie, PA. I'll never live in that swamp condition ever again. I was born in Erie and have family there & they can love Erie if they want, it's bad for my head!

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