Epilepsy Foundation

My 14 year old daughter had her first seizure two weeks after getting her second Gardasil vaccination.  She has now been diagnosed with Juvenile Myoclonic Epilepsy.  Is there anyone out there that has had this happen?  I have no idea if there is any correlation between Gardasil and her Epilepsy.

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Kim - I happen to have several articles relating to Gardisil.  I will try to send you the links - not all of them relate to seizures.

http://www.diseaseproof.com/archives/toxins-gardasil-denied-approva...

 http://abcnews.go.com/Health/CancerPreventionAndTreatment/story?id=...

http://www.infowars.com/gardasil-researcher-drops-a-bombshell/

 

BTW my daughter did not have the vaccine - I have the info bc it  was a hot topic in my circle of friends.Good luck to you.

Thank you, Ann.
You may want to contact the vaccine manufacturer's website at:  http://www.gardasil.com/what-is-gardasil/index.html?WT.mc_id=GL0ES and the FDA to report this adverse event at,www.fda.gov/medwatch, or call 1-800-FDA-1088.

Due to the vaccine being one of the newer vaccines on the market, this type of research has not occurred. Therefore, EF recommends that parents contact the FDA to report this type of adverse event and to seek additional information.

Mary Ann Thornton
The Epilepsy Foundation
The Epilepsy Resource Center
My formerly healthy 16 year old daughter began having horrible seizures following her one and only dose of Gardasil in July 2009.  Since then, we have been to numerous doctors and spent countless hours researching the side effects of the vaccine.  There have been 93 deaths and over 21,000 adverse reactions reported to VAERS associated with the Gardasil vaccine.  I have found thousands of other girls who suffer from seizures now and the only commonality amongst these girls is the vaccine.  Please check out truthaboutgardasil.org for more information.  There are also some Facebook groups (Families Affected by Gardasil, Gardasil, Truth About Gardasil) that have all of the latest information as well as support for those affected by the Gardasil vaccine.

Lydia,

 

Thank you for replying and for all of the great information.  I did join the facebook group "Truth about Gardasil" after my daughter's first seizure.  

 

Has your daughter been diagnosed with Epilepsy?  Does she have a neurologist?  Has the Neuro said that her seizures could have been caused by the vaccine?

 

Looking forward to hearing from you.

 

Kim

Kim,

 

To answer your question, no...my daughter did not show EEG activity immediately following her seizures; therefore, they consider them to be non-epileptic seizures.  However, the pediatric neurologist we see put her on anti-seizure meds anyway and it helped considerably.  We've gone from 12 seizures or so per day down to a few per month.  Our neuro. has stated that, although she cannot yet prove that Gardasil caused these seizures, she has seen more and more patients in which Gardasil is the only commonality.  One of her friends (also a neurologist in the same city) was recently appointed to a special committee formed by the AAN (American Academy of Neurology) to investigate/study the Gardasil vaccine and its side effects.  This committee was formed because more and more neurologists are seeing cases all over the country.  I'm hoping that they will connect the dots soon and find a cure for our girls. 

Lydia,

 

Thank you again for all of the information. 

 

I get so angry when I hear of things like that.  I get upset with the the vaccine makers, the Dr. that told me it was perfectly safe and at myself for not doing more research!  Getting angry does nothing for me, though.  It is what it is.  I hope we're able to find out someday if the vaccine is the cause.  Maybe we'll never know!  It's interesting that they've put together a committee to take a look at it.  I hope they make progress. 


Mary Ann,

 

Thank you very much for the information.
I&R Group said:

You may want to contact the vaccine manufacturer's website at:  http://www.gardasil.com/what-is-gardasil/index.html?WT.mc_id=GL0ES and the FDA to report this adverse event at,www.fda.gov/medwatch, or call 1-800-FDA-1088.

Due to the vaccine being one of the newer vaccines on the market, this type of research has not occurred. Therefore, EF recommends that parents contact the FDA to report this type of adverse event and to seek additional information.

Mary Ann Thornton
The Epilepsy Foundation
The Epilepsy Resource Center

Hi Lydia,

 

Any chance I could have the names of the two Neuro's?

 

I just checked out the links you sent and found them very helpful!  Thank you.

 

Lydia Miller said:

Kim,

 

To answer your question, no...my daughter did not show EEG activity immediately following her seizures; therefore, they consider them to be non-epileptic seizures.  However, the pediatric neurologist we see put her on anti-seizure meds anyway and it helped considerably.  We've gone from 12 seizures or so per day down to a few per month.  Our neuro. has stated that, although she cannot yet prove that Gardasil caused these seizures, she has seen more and more patients in which Gardasil is the only commonality.  One of her friends (also a neurologist in the same city) was recently appointed to a special committee formed by the AAN (American Academy of Neurology) to investigate/study the Gardasil vaccine and its side effects.  This committee was formed because more and more neurologists are seeing cases all over the country.  I'm hoping that they will connect the dots soon and find a cure for our girls. 

The pediatric neuros. I mentioned are in Indianapolis, IN.  We see Dr. Lisa McGuire (St. Vincent's) and some of the other girls in Indiana see Dr. Lisa Zimmer (Capitol Neurology/Riley).  The adult neuro. who has been appointed to the AAN's committee to review the side effects of Gardasil is Dr. Karen Roos (IU Med Ctr.).
Excellent.  Thank you so much! 

Kim,

My daughter was diagnosed with Epilepsy in Feb 2008.  Her first seizure was in Dec 2007 just about two weeks following her second Gardasil vaccination.  I didn't put the two together right away, but when a friend asked about the two, it was like a lightbul going on.  But, I have had three neuologists, two pediatricians and my ob/gyn all tell me that there is no indication of a connection.  Thankfully, my daughter's seizures have been under control for nearly two years now, thanks to Keppra.  Of course, she did not recieve the third dose of the vaccination, and her younger sister has not, nor will she, get it at all.  Believe me, the pediatrician tried to convince me otherwise.   

 

Thank you to Ann for those links, I'll be looking through those, next. 

 

Thank you to all who are sharing their experiences here. 

 

Kae

 

 

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