Feeling Helpless regarding my Daughter

[Alane]

My daughter was diagnosed when she was 4 with seizures, and she will be 10 in September.  We are still battling this condition and have tried different kind of meds to date.  She has a seizure about once every 2 months, which is better than once a week like last year.  The doctor's keep telling me that they are sure she will grow out of this once she is thru puberty.  But, in the meantime she is struggling in school academically and with her behavior.  This of course is hurting her chances for making friends, because she is "different" than the other kids.  She doesn't seem to mind and still is not fully capable of understanding what she has nor does she care.  She has expressive language difficulties which she has a hard time going up and talking to other kids her age, plus they have a hard time understanding her.  I feel bad for her, only because I wish she would just be a happy, normal  9 year old with lots of friends and having fun sleepovers with friends.  But, friends don't call.  She has friends that live on our street, but I feel the kids only play with her because their mom says they have to.  She is always calling them or knocking on their doors and I feel sometimes she may be pestering them to much. 

I basically joined this group to talk with other parents that are experiencing the same things that we are going thru.  Especially, with puberty right around the corner this should be fun. :)

Like I said, the only good thing that she doesn't comprehend what she is up against and the struggles to come.  Her ability to do this is also non existent.  It just makes me sad that she is going to go thru this without close friends to stand by her side.  She has played softball, soccer and we just signed her up for Volleyball.  But, with her learning disability she has a hard time comprehending all the rules that are involved and coaches look like they are ready to pull their hair out.

I just hope and pray that she will outgrow this and go on and be a very independent young lady. 

Thanks for listening and any advice would be appreciated!!

[Vanessa]

Hi where are you located? What you described alot we have here.  :(. I have an 8 year old...Hopefully we are close..Always looking for extra friends for both of us!

[JMO]

I think as parents we all wish for an easier road for our children. The helplessness is hard and frustrating. 
My daughter has 5-10 seizures/week as well as behavioral issues, language and motor delays. It's been a long hard road only unique because it's ours. But it's a story repeated by thousands. 

[Alane]

Hello, I'm located in the Cincinnati, Ohio area.  Where are you from?

Vanessa said:

Hi where are you located? What you described alot we have here.  :(. I have an 8 year old...Hopefully we are close..Always looking for extra friends for both of us!

[Terrance Lee Fields]

I am located in Macomb Michigan, I lived close to the water of lake st clair. I hope everything goes good for you,I myself was there and went threw the same thing as you are. I was a loner to, didnt fit in with others at times. I couldnt play sports having epilepsy,I olny had few friends stand by me in school to help me. But no matter what people say or how they look or what they think, aways do the best that you can.Hopeing to get threw this. But remember always think positive. You are welcome to read my site on how I got and now free of sizures. Take care now

Terry

[Terrance Lee Fields]

Hi Alane

how are things going for you in school,I hope things are getting better and hope you and your Mom feel better,Just concern and care for people like us and everybody else with epliepsy. You and your famile take care and keep your heads up.Terry