Epilepsy Foundation

I was just curious as to how many of us with E are on disability.

Tags: assistance, benefits, diability, disabled, epilepsy, medical, security, social

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I do not. I kept putting it off thinking some day I would be better and could work. It was a mistake doing that because I let the amount of time I could not work, go too long. I could not work for over 5 years. If I had applied for it earlier, I probably could of gotten it, but now all the credits for disability expired completely. I think it is crazy, but our government sometimes??? crazy!
I'm on my 3rd try, and have a court date in August. I've been waiting a year or more just to get a court date for this 3rd time. I'm curious to know if anyone has actually gotten disability for their epilepsy.
Lrjg said:
I do not. I kept putting it off thinking some day I would be better and could work. It was a mistake doing that because I let the amount of time I could not work, go too long. I could not work for over 5 years.
If I had applied for it earlier, I probably could of gotten it, but now
all the credits for disability expired completely. I think it is crazy,
but our government sometimes??? crazy!

I kept thinking the same thing...the combination of meds would finally work...then the next combination would work, and the next. Finally, after two and a half years, I applied. I was denied.

For the heck of it, I contacted a SS lawyer. He couldn't believe, after hearing about all of my side effects and injuries due to seizures, I hadn't reapplied already. (Yeah, right, like he doesn't say that to everyone!)

Surprisingly, I was approved within 7 months. And I kicked myself in the butt for not applying sooner. But, you keep thinking you'll be able to go to work, as you've said...we're all stubborn like that...well, not stubborn, just hopeful. Sometimes, at least in my case, I could no longer drive over an hour and write quickly. My brain just needed a rest, I guess, after 22 years and needed to do its' own thing.

Like forget grammar. Is it "its' or it's."
See what I mean?
Dang meds.

Anyway, good luck with your court date in August. Yes, people CAN get disability for epilepsy! Best of luck and let us know how you do! (there she goes again with the bad grammar!)

Seriously, if you have a good lawyer and you have all of your documents in place, including MRIs, EEGs, VEEG reports, doctor notes...all are very helpful.

I thanked my neurologist for his help in his assistance in me being granted disability and he scratched his head and said, "Umm, you're welcome, but no one even contacted me."

So I guess my lawyer was really good at convincing "them" my brain was really screwed up.

Then again, in the end, his firm got a very healthy chunk of my check!

Best wishes!!
Hi Lauren, I am currently trying to get disability but keep running into a brick wall .I getv told that I dont have enough seizures per month or that I have proven that I can hold gainful employment . but I also run into a problem getting a job because of the E . Ieven went to Mcdonlads and was told that werent sure if it would be safe for me to work there. So I dont know what to do cause I need some way to support me and my wife until they make up their mind am I or Am Inot disabled and where can I get a job?
Yeah, I've had tons of trouble getting any job. Obviously I cannot drive because of my seizures. Also, ever since my surgeries (especially the last one) I have had a lot of trouble retaining information. For example, I have to read and reread things over and over, and still have problems getting information "processed" into my brain. That makes people giving me directions, watching tv or a movie, and others daily things quite difficult. I'm afraid that even if I manage to get a job and somehow get there, I won't be able to handle learning everything to do and know on the job. Know what I mean?
with your inability to retain info and that it should be a little easier for you to get your disability
Well, I first applied and they said I didn't need it as long as a get a job where "I won't need to go up on ladders." Wow...that's ignorant. So I argued that decision-second denial. A year or so ago, I found a lawyer and working on that 3rd time...hopefully not another denial.

tracy allen turck said:
with your inability to retain info and that it should be a little easier for you to get your disability
if anyone does get disability in west tenn plz tell me how to get started. i have no local support group, no insurance, and i have seizures on a daily basis so it makes it hard to work at my job (telemarketer -YUK!! LOL) anyone with advice or info plz tell me thx
Hi Laurence, It wasbeen twety years I was trying to get some assistance from social services they always say I make to much money even I work part time then.
My son's neurologist told us that from his experience, people with epilepsy almost always get turned down for Social Security disability benefits the first time they apply, but they almost always get the benefits eventually (if their seizures are uncontrolled). From our experience it's worth it to hire a lawyer. It's also very important to keep good records of seizures and to provide the records to your doctor and lawyer. If your doctor will write a letter about your uncontrolled seizures, the treatments you have tried, and the impact on your life, that's half the battle won.
thats the same thing I have been told but when your dr. wont right the letter because they say you have relatively good control when on meds. that doesnt help and when companies wont put their necks out by saying no we wont hire you because of your seizures what do you do?
I have tons of letters, uncontrolled seizures after 3 surgeries and trying over 10 different AEDs. Still, I don't know if they really think epilepsy is that serious enough to get disability. I'm sure they deny EVERYONE the first time. Anyone know how long it takes to go to effect if you get it? Someone said they thought it took 2 years before going into effect. :(

Carolyn Jett said:
My son's neurologist told us that from his experience, people with epilepsy almost always get turned down for Social Security disability benefits the first time they apply, but they almost always get the benefits eventually (if their seizures are uncontrolled). From our experience it's worth it to hire a lawyer. It's also very important to keep good records of seizures and to provide the records to your doctor and lawyer. If your doctor will write a letter about your uncontrolled seizures, the treatments you have tried, and the impact on your life, that's half the battle won.

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