Epilepsy Foundation

Have any of you parents dealt with this medication? They have given it to my daughter to try to keep her from seizing while we take her off her Trileptal. She has been breaking out in a rash and hives. They are having us take her off the Trileptal so see if she's having a reaction to it.

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My daughter started this when she was 2 (she is almost 6 now).  It is a life saver for us.  She has a reaction to most meds and this one just makes her a little hyper whenever we go up.  It is everything for her-one of her seizure meds, her dysautonomia med, and her rescue med.  Most children get drowsy on it and I know it can be addictive so you go up and down slowly on it.  Good luck with it, hopefully it will help your girl.


They said they are using it as a temperary med for her until we see if the rash is related to her Trileptal. I was afraid the klonopin would knock her out but didn't seem to affect her.


paula said:

My daughter started this when she was 2 (she is almost 6 now).  It is a life saver for us.  She has a reaction to most meds and this one just makes her a little hyper whenever we go up.  It is everything for her-one of her seizure meds, her dysautonomia med, and her rescue med.  Most children get drowsy on it and I know it can be addictive so you go up and down slowly on it.  Good luck with it, hopefully it will help your girl.

I will reitirate what Paula said, it can be addictive.  With that said however it was a lifesaver for our son.  Klonopin was added to the trio of my sons meds when he was 4 and it got his seizures under control.  He was on Depakote, Topamax and Klonopin for about 3 years, he is now 13 and off all seizure meds.  So it can be a tremedous benefit. 

 

 

Wow off all meds. How amazing! I bet when you were doing 3 you could hardly dream of having none:) Good Job:)
The addictive property is why they are having her on it temporarily. They said if her rash is gone by friday morning then they are going to take her off the Klonopin and put her on another medicine.
It's a good "carry through" med. We go up temporarily whenever my daughter is sick and having breakthroughs.

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